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CANCER SUXS!!!!!!!! Jump to page 2 3 4 5 6 7 8 9 10 Last page Next thread
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2501. |
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I did it for a change |
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Hi maewest how did your day go I think it was better than ours over here , wet and cold. Not a lot too say tonight with everyone away or going away.
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2502. |
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Boo Boop! |
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Hows it going on the Coast. Bit chilly here but not near as bad as was forecast! Maybe tomorrow. I will be crashing early tonight. Can hardly keep my eyes open.
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2503. |
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It has been quiet on here |
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It must be that Joystik that uses up all the space!! They might get snowed in, in Queenstown. Wouldn't mind that! Hey my inbox is filling up fast!!
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2504. |
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Bogey |
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how is Ryan tonight? Good that he is eating, even little bits. Have you managed to get any sleep? Checked out your pics. Ryan still looks a cool dude with less hair.Is he coping with that okay? Love and (((HUGS))) to you both XXX
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2505. |
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hello we have had such a good day |
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hes eaten toast,noodles,spaghetti,ice cream only small mouthfuls but its something his mouth is really sore still full of ulcers, hes such a good boy does all his mouth cares like he should. He dosent mind losing his hair this time the whispy bits that are there at the moment are so blonde. Nice to see him not so drugged up.
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2506. |
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Bogey |
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that is such good news. He is such a little trouper. You sound much better too. Let's hope the worst is over...about time! How long do they think it will take for the ulcers to heal? Hoping for an even better day for you both tomorrow. XX
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2507. |
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good for ryan |
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nice to hear he is eating make you feel better to bogey. Have a good night.
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2508. |
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I forgot the most important thing we are |
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seeing neutrafils we are at 0.63....
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2509. |
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Just had a text from |
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Paula. She sends you all her love. Josh is a lot better. Fortunately he only had a mild dose of chicken pox. She said she feels like she is going nutty, but was that already!!! They are hoping to be home on Monday.
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2510. |
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Nitey nite everyone |
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Hope you all have a lovely day tomorrow. Sonia, you have a wonderful holiday. Soak up that sunshine. Look forward to hearing all about it when you get back.XXXX
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2511. |
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bogeyi |
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thats great news!!!hope those mouth ulcers clear up quickly now:)) janetmk1 (39 ) 10:28 pm, 12 Aug
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2512. |
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Hi All :o) |
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All packed :o) Just three things to add in tomorrow morning - easy! OK just repainting my nails now then off to bed. Thanks everyone, glad Josh and Ryan are both on the improve (YAY!) I'll be thinking of you all, while relishing quality time with my two darling girls (and Brent of course ;o). Nighty night all xoxoxoxo soniat-d (153 ) 10:33 pm, 12 Aug
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2513. |
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Good Morning Everyone :o) |
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Have fun while I'm away ;o) soniat-d (153 ) 8:35 am, 13 Aug
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2514. |
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good morning........we are not neutraphenic |
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yyyyyyaaaaaaahhhhhhoooooooooooooooo
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2515. |
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Sonia you guys enjoy |
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yourself........how long are you away for.
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2516. |
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10 days |
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back late 23 soniat-d (153 ) 8:57 am, 13 Aug
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2517. |
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hopefully we might be ready |
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to go home if all goes well....
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2518. |
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bugger didnt finish the sentence |
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around that date.......I would like to be home for tylers birthday
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2519. |
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Great news Bogey... |
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hope all goes well from now until the 23rd. Can relate to that. I was finished my radiation and made it home 3 days before my daughters birthday. Onward and upward now! landylass (48 ) 11:05 am, 13 Aug
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2520. |
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I agree with early detection |
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Hi I'm 32yr old female,I don't have cancer of anysort, however my Mum was 1st diagnosed with breast cancer when she was my age, and had a mastectomy 2 christmases ago. My sisters and I all now have mammograms, and have been told that we need to do this every two years.My grandfather died of cancer, Aunties, Uncles. I just wanted to say hi, and yes cancer does suck muzzr12 (12 ) 11:17 am, 13 Aug |
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2521. |
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well sonia not long now until you board that |
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plane, oystik hope your night away was fun, paula hopefully we see you back on here in a few days. Hello janetmk1,landylass,boop,maewest and everyone else bogeyi (484 ) 12:05 pm, 13 Aug
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2522. |
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hugs to all |
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Been a bit worried about this topic since i saw someone comment on how long it was - not a usual poster - so saved it all today and will save it each day just in case. Hugs to all. Trish
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2523. |
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Bogeyi |
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Thats great news !!! After all hes been through its nice to hear things are going well :)) janetmk1 (39 ) 1:25 pm, 13 Aug
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2524. |
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Thanks Trish |
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We would hate to lose it all again!! janetmk1 (39 ) 1:26 pm, 13 Aug
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2525. |
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thanks trishm |
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hi janetmk1, just heard from Paula they are allowed home today.....yipee a good day all round so far..
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2526. |
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that sure is good news... |
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I am glad the chicken pox was only mild. I was so scared for her after Ryans terrible experience with it. janetmk1 (39 ) 1:45 pm, 13 Aug
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2527. |
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Bogeyi |
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did you see the message from Luke? janetmk1 (39 ) 1:46 pm, 13 Aug
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2528. |
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No............... but i saw it on another thread |
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that someone copied and pasted on there i presume he sent out a mass email to people that had emailed him????
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2529. |
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yes , he did email |
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everyone who had joined his caring bridge site. I hope everythig works out for him in oz. janetmk1 (39 ) 3:14 pm, 13 Aug
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2530. |
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bump |
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back to the top :)) janetmk1 (39 ) 4:24 pm, 13 Aug
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2531. |
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that is great news bogey |
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that would be great for tyler to be home. How is the appertite today? At least today we have had good news with Ryan and Joshi just hope sonia can get over there and have a really good time.
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2532. |
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weeeeeeee haaaaaaaaaaaad an earthquake |
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I am stuttering a bit it felt quite big.That is good trish, thanks. Hi janet we are a small team at the moment. Maewest should be home soon. Terrible day here rain and hail.
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2533. |
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just read about luke |
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what an awful thing I don't know one way or the other hate to think that would happen someone lie, no I don't think so.twinkie knew him I think
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2534. |
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Hi boop Janet Bogeyi and all |
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Just finished my farm chores a wee while ago and am pleased to be inside now, weather outside is quite wintery ans I have to say it is not what we have been used to! Bogeyi, you will be pleased that Ryans Neuts are at last being able to be measured Oh ... I remember now I think you said he is not neutropenic now.. that is just excellent news. farmerlloyd (24 ) 5:16 pm, 13 Aug
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2535. |
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Boop |
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What's going on up there ?? we don't often have earthquakes here in Southland ..and I'm quite pleased about that. I do not like the feeling they give me .Hope it was only a minor one with no damage ... farmerlloyd (24 ) 5:19 pm, 13 Aug
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2536. |
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hi farmerlloyd a wintery blast here |
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today don't mind that but could do without the earthquakes.
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2537. |
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Hi Boop |
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Luke wasn't lying he just chose not to get treatment at wellington hospital because of the type of cancer Koen has, he wants to get him treated in oz and look at other options too. Plus he has friends and support over there so you can't blame him really. janetmk1 (39 ) 5:23 pm, 13 Aug
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2538. |
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joystick hope yo,DIZEur family had a good time |
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get on here please it is awful where is everyone. YAHOOOOOOOOOOO MAEWEST, JANET, MERIDIAN, LANDYLASS, KIWIKAZ, BOGEY, DIZE okay I am sulking now will get tea. Love you all xxxxxxxx
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2539. |
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Hi farmerlloyd, |
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For a change we have had a beautiful day but now the sun is going down it is getting very cold. No doubt the rain will come back tomorrow if you guys have all had it.Poor lambs will freeze in the cold, I would be hopeless on a farm I would be bringing them all inside to sit by the heater!! janetmk1 (39 ) 5:26 pm, 13 Aug
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2540. |
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Time for me to make dinner... |
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too boop, Boys will all complain LOL am making a salad and they hate salad!!! janetmk1 (39 ) 5:28 pm, 13 Aug
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2541. |
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Nothing wrong with that Janet |
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You would be an excellent shepherd!!(Or is that shepherdess?) My early memories of lambing included hearing stories of one dedicated farmer who could bring 30 chilled lambs into his shearing shed ... then .. so this tale goes ... was able to put each lamb back with it's correct mother when the lamb was stong enough,using only his instinct to match them correctly ... and this was in the days before aerosol markers were invented. I think it may have been an old wives tale really .. But I remained in awe at this man's abilities until he died well into his 90's farmerlloyd (24 ) 5:36 pm, 13 Aug
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2542. |
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Hi everybody |
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Back you all come!! Sonia is in sunny Fiji, Joystik probably isn't home yet from her weekend away, so we need to rally around and make this thread longer for Sonia. It is absolutely FREEZING tonight in Hamilton, with a bitterly cold wind outside. Brrr. Hope you are inside now Farmer Lloyd. Only 3 more days till we are off to the Sunshine Coast, can't wait.
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2543. |
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Guess what |
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anybody there im going to make you guess.
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2544. |
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Hi Dize & Bogeyi |
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weather is pretty awful all over from what I can see. But I am sure sun will shine in a day or two. Hey that is great news for you to be heading to a warmer climate. A good time of year to be holidaying in Aus or the Islands I am sure. Hope you have an enjoyable time. I am no good at guessing things, Bogeyi. So I give up already ... Maybe somebody will be able to help Oh I can't stand it .. you will have to say !! farmerlloyd (24 ) 7:04 pm, 13 Aug
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2545. |
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what bogey?? |
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no good at guessing either - fingers crossed for good news!!
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2546. |
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Ummmmm... |
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Is it Ryans white cells?? janetmk1 (39 ) 7:35 pm, 13 Aug
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2547. |
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wow farmerlloyd |
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what a nice man he must have been to take care of the lambs like that, but yes it does sound a bit like a tale. Though the mums know which lamb is theirs don't they? Sorry bit ignorant when it comes to sheep. But I love animals and regularly bring home a lost or injured animals...kids think I am nuts lol. janetmk1 (39 ) 7:39 pm, 13 Aug
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2548. |
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Dize |
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whereabouts in the sunshine coast are you going? I love it up there, beautiful weather and beaches. janetmk1 (39 ) 7:40 pm, 13 Aug
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2549. |
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Awwwwwwwwwwwwww |
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Bogey tell usssssssssssss!!!!!! janetmk1 (39 ) 7:42 pm, 13 Aug
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2550. |
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Tell me Bogeyi.................................... |
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I'm back!!!! joystik (285 ) 7:44 pm, 13 Aug
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2551. |
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Hello Joystik |
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The weather finally turned wintery for Southland eh!!! But I saw the foreast is for some sun quite soon .Hope you had a good visit to Q'town. If you go back a fewe posts you will see how you were missed on the M/B last night farmerlloyd (24 ) 7:48 pm, 13 Aug
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2552. |
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Hi everyone, we had such a BLAST up in Queenstown. |
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Stated at the Heritage Hotel at Fernhill. Really swanky place and fairly expensive I thought at $290 for the night!! But who cares....we dont ever stay at expensive places. When we got up there we met up withour friends and went straight up on the Gondola to the skyline restraunt for lunch. Just lovely. Then sat up there and waited for the snow to arrive. It did snow for a wee while, but stopped before much settled on the ground. We stayed up there until about 5.30, and then went back down to the hotel and had dinner in house. We had wanted to have dinner at the Skyline but they were completely boked out for a wedding party of 340 people!! joystik (285 ) 7:50 pm, 13 Aug
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2553. |
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welcome back Joystik :)) |
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ZZZWe missed you last night, it was soooooo quiet with out you!! janetmk1 (39 ) 7:50 pm, 13 Aug
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2554. |
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oops .. |
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ignore the ZZZ dunno how they got there, I am the typo queen!! janetmk1 (39 ) 7:51 pm, 13 Aug
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2555. |
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Awwww....... thanks for issing me so much...... |
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Guess what???? The first thing I noticed in our Hotel room was the internet connection and my lap top was back at home!! joystik (285 ) 7:54 pm, 13 Aug
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2556. |
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Yes Janet I always was |
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brought up to help save every lamb that was in trouble ( and still do that as does every farmer ) Only when I got older and became a farmer on my own account I noticed a slightly wercenary (?) side come to light in how I saw my stock .Even today I still want the best for my stock, but their value in $$ has started to feature more in my thinking. What I am trying to say is that if I can save this lamb or that lamb I now see it more in dollar terms than I did when I was footloose and carefree !! I hope that came out right !!? farmerlloyd (24 ) 7:57 pm, 13 Aug
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2557. |
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oops terrible typo |
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mercenary farmerlloyd (24 ) 8:01 pm, 13 Aug
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2558. |
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Thanks Janet, no I think I would take that prize.. |
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for being typo winner of the year!! Nice to see you too. Glad Danny had a nice birthday too. You were asking about the heat pump. I just love it, although the one we put in here, we had actually bought to put in our Motor Home, and its really too small for this house. It does the job though with help from a night store, and and another electric heater when its really cold. Dosent completwly eliminate crying windows, but if it was say a 7kw model it would easily. This one is a 2.3kw. The best thing is no mess, no smoke and pollution, no dust and crap all over the hearth and no having to get wood, when you can be in Queenstown!! joystik (285 ) 8:02 pm, 13 Aug
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2559. |
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oh yeah |
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I totally can understand that, as much as every animal is cute in their own way its very different when they are your income. We employ a lot of staff and we like to pay them well but at the same time it still comes out of your pocket,same as with the sheep, you like to treat them well but can only do that to a point coz it comes out of your pocket. All in the bottom line... if that makes sense!! janetmk1 (39 ) 8:03 pm, 13 Aug
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2560. |
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Thanks for that joystik.. |
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Can I ask what brand your is? the way I understand it is some are far better than others and some companies are better than others at sorting out problams with them. janetmk1 (39 ) 8:05 pm, 13 Aug
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2561. |
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BTW Joystik... |
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Glad you had a lovely night away. Poor Sonia didn't get good news yesterday as you probably read. I think we all felt like crying for her. janetmk1 (39 ) 8:06 pm, 13 Aug
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2562. |
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I read it Janet about Sonia and I did cry for her, |
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but yo know what?? I think she had an idea that thinks weren't quite 100% or she wouldn't have been asking for the CT early. I think woman especailly, have sort of intuition, when things arent right....I know I did. She is truely a wonderfulpositive and I'm sure she will eventually beat it, but she is really having to work for that good end result isnt she...... joystik (285 ) 8:10 pm, 13 Aug
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2563. |
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Janet ours is a Blue Seal, which is one that is |
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used extensivly and commercially throughout Australia and New Zealand. I got it off Trade me, for around $600, and as I said it was for the motorhome. The trader night_dragon sells heaps ofthem and pretty cheaply. Some of them are self install models, like ours, but other larger ones have to be installed at a cost of between $500 and $900 I believe......hope that helps joystik (285 ) 8:14 pm, 13 Aug
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2564. |
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Farmerlloyd, nice to see you again. When I was |
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growing up we had a dairy farm, but did carry about 80 romney ewes and kept the lambs for feeding the family, and some to sell. It was always my job, from about 10 onwards, to look around the flock both morning and night, before school, to amke sure they were ok while lambing. Sometimes there wwre problems and some would be mis mothered or just weak for some reason, and they would always end up in our lounge by the fire until they were up and going good. My mum was very good to them and would get up during the night and feed them etc. So much was her concern, that the night our house burned down in sept 1976, the only thing she took out of the house, was an orphan lamb that had been in front of the fire keeping warm! Unfortunately she put it in it lovely warm box, beside the garage and the fire brigade drowned it, hosing the garage down. Sad ending aye???? joystik (285 ) 8:22 pm, 13 Aug
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2565. |
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great thanks Joystik |
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I will keep an eye on their auctions. i am also doing my kitchen up so have been pricing kitchens as well. We only brought this house earlier in the year and it wants so much doing to it. Its hard to know where to begin. We made an extra bedroom out of what was the laundry and we are putting in stairs to the room downstairs and what was going to be the laundry but have struck a problem there with drainage so back to the drawing board with that one! janetmk1 (39 ) 8:24 pm, 13 Aug
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2566. |
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Hey Bogeyi, SO pleased to see that Ryan has got |
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some counts going at last, and is no longer neutropenic. Well done Ryan. He has turned another corner which is great news. What day is Tylers birthday?? Is he an August baby too, like me??? Hope things continue to go really well for Ryan. He deserves a good lucky break from from all this stuff bogeyi. Hey! What is your secret anyway??? joystik (285 ) 8:25 pm, 13 Aug
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2567. |
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Hey Janet I see there are some really good kitchen |
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buys to be had on trade me too. Well worth a look I reckon... joystik (285 ) 8:27 pm, 13 Aug
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2568. |
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Joystik |
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Thats so sad, I bet your mum was really upset. janetmk1 (39 ) 8:30 pm, 13 Aug
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2569. |
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thanks joystik |
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I will keep my eye on them also, I really don't want to spend a fortune as I just like a plain tidy kitchen... the modern white look as opposed to the country look. janetmk1 (39 ) 8:33 pm, 13 Aug
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2570. |
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evening all, |
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hey thats good news about ryan. i have been a blob doing not much today had a good night and a few laughs which was required. blew them cobb webs out. hubby had a good nite but came home early with his mum so i stayed on. weather wasnt to good though guess we have to have a turn. have a sick sheep tonite. just been out to check her. hope she will be ok . thats good josh gets to come home. kiwikaz3 (11 ) 8:34 pm, 13 Aug
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2571. |
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joystik |
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glad you had a nice time in queenstown its nice to treat yourself occasionaly you deserve it. :) that was sad about your mums house and the wee lamb. kiwikaz3 (11 ) 8:37 pm, 13 Aug
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2572. |
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joystik, |
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sounds like you have a birthday coming up too i have miss 10 this week 17th and mine on the 21st. trying to think of something nice to do for her birthday she went to a party at the weekend they went to pulse (i never been there and didnt get to take her) but she said it was cool, they got hair crimped little coloured extension and some lip gloss etc. birthday girl got the works and they supplied party food as well. kiwikaz3 (11 ) 8:43 pm, 13 Aug
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2573. |
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hi guys sorry have only just sat back down |
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Ryan got to go out of his room we even went out the double doors and for a walk down the ward, he had to wear a mask and there were hardly any visitors but he was out and about.. Joystik tylers birthday is sept 22nd
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2574. |
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Thats really good news Bogey:)) |
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I bet he thoroughly enjoyed that after being a prisoner in that room for so long!! Is he holding all his food in now? janetmk1 (39 ) 8:57 pm, 13 Aug
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2575. |
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have just found out one of my sons |
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friends has acute leukemia, poor him, poor family, does anyone know anything about this disease??? kermitgreen1 (29 ) 8:58 pm, 13 Aug
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2576. |
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Wow what a story to tell Joystik |
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I had to read it twice just so I could take it all in !! I feel so sad that you have had the experience of a house fire . It is one of the worries of all rural people I reckon. I never want to go through that !! Before the days of rapid numbers and flash communication centres ( and yes, I know they have their shortcomings too ) it was a bit of a lottery if the emergency services arrived at the right address or not. Some may say it hasn't changed much. farmerlloyd (24 ) 9:17 pm, 13 Aug
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2577. |
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kermitgreen1 |
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its always a shock when you find out how old is your sons friend?? i dont know much about leukemia except that my friends husband was diagnoised with it at 28 and he has had chemo and all good now. he did get into the natural stuff and his wife swears by it. so long may it last for him she keeps him on a maintance programme and he is in a very stressful busy job. kiwikaz3 (11 ) 9:18 pm, 13 Aug
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2578. |
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Kiwikaz he is 19 |
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yes its a huge shock, i feel for everyone... kermitgreen1 (29 ) 9:30 pm, 13 Aug
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2579. |
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bogeyi |
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good one do him good to get out of those 4 walls for 5 :) hope things continue on the up. I am in for a late night tonite hubby is tired afta the last couple of days he is still in bed from his after noon nap. takes him a couple of hours to get up . have cuppa, talk to dogs, have his tea, have his anti seizure meds. not that he has been eating much this week. right off food happier to have a coffee :( kiwikaz3 (11 ) 9:30 pm, 13 Aug
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2580. |
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Ohh Bogeyi, that is just great that he has managed |
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to get up and about and out of that room called home for now. At what stage is he allowed home? And at what stage is the transpants considered a success? Its good to seem him making good progress in a forwards direction. Laurens birthday is Sept 18, same day as my dear Mum's,and my brother is Sept 23rd. Good time for babies is spring aye?? joystik (285 ) 9:44 pm, 13 Aug
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2581. |
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Hi kiwikaz, pleased to see you enjoyed your |
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night out last night, and hubby too. My heart really does go out to you guys - it must be so difficult at times. There are so many birthdays in august too. Mine is 25th, my father is 30th, auntie 22nd, step mother 24th, neice 6th, step daughter that died, 14th, Kevins eldest grandaughter 12th, and two in your family as well. What a busy time of year. Girls are starting to become interested i hair and makeup by ten arent they. I'm sure you will make her day very special for her - you're another great Mummy. ((((HUGS))))) joystik (285 ) 9:48 pm, 13 Aug
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2582. |
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Farmerlloyd, you got it right about house fires |
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and living in a rural area. We lived 25 mibutes from the nearest rural volunteer fire brigade, and the night of the fire was also the night of the Fire service anual Caberet! So those two events shouldn't be put in the same sentence really. I must say they did their best but were too late to save a thing actually. Mum never got over it, and the shock of the whole thing was what triggered her cancer, which took her life slowly over the following 8 years. So sad..... joystik (285 ) 9:54 pm, 13 Aug
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2583. |
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we will be here for a while still |
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although hes doing good we are no where out of the woods yet, Ryan is sitting next to me having toast and a milo all food is staying down still only small amounts but a huge step forward.
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2584. |
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Hi kermit, sorry about your friend too. Always |
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very sad to learn that someone has cancer, but so many of them are very treatable and cureable now days, so there is hope. There are a few posters o here that know about Leukaemia that might be able to help you. I had breast cancer, so I know more about that sort than any others. Think positive and have plenty of faith, hope and love around. Take care and ((((HUGS)))) to you and your friend.... joystik (285 ) 10:07 pm, 13 Aug
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2585. |
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Oh dear me Joystik, |
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what a terrible ending .... But I somehow feel that a lot of her may be seen in the way you live and your love for life ( and she obviously cared for animals just as you ). Such a loss for you to have to go through, far too soon in her life. farmerlloyd (24 ) 10:11 pm, 13 Aug
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2586. |
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Bogeyi, its great that he's managing to eat a .... |
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bit of food and keep it down too. He will get better quicker while he's able to do that. Are the other kids allowed in to see him yet?? You have probably told us all the pro's and cons, Bogeyi, but its such a lot to read through to find out what you said before. I'll just keep on sending you heaps of good luck and hugs and you'll be home by Tylers birthday. That would be so good for you all...(((HUGS)))) joystik (285 ) 10:12 pm, 13 Aug
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2587. |
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Kermit |
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I will fess up. I had a leukaemia a few years ago. Quite a rare variety and very treatable so have only good things to say about how well I have remained. There are more than 100 different leaukaemias and I am sure you will find a few posters here who have more first hand knowledge of the condition your son's friend has farmerlloyd (24 ) 10:22 pm, 13 Aug
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2588. |
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Yes farmerlloyd, that would be a good assumption |
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of me and the way I live my life. Mum didn't really have much of a life in a lot of ways, and she had lost the battle by age 48. That is too young for anyone - you haven't really lived by then in lots of cases, especially when you have raised 6 children, like she had. My daughter Lauren was born on her birthday some 7 years after she dies, and Lauren is so much like her in lots of ways, which is lovely too. joystik (285 ) 10:23 pm, 13 Aug
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2589. |
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Hello Boop! Where are you tonight?? I see you |
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have been a bit lonely while I was missing in action!! I think its lovely that you all missed me so much. I must confess, I LOVE the pokies, but only go there with an amount of money that I am prepared to lose. Because I know all to well that they are there to make a bit profit at my expense. Kevin and I took $200 each, and Lauren gave me her $20 pocket monet to gamble. I turned her $20 into $50 so she was stoked, and we came out with about $120 over what we spent. So we were happy, and we dont do it often. Bit of a treat, as was the flash hotel!! joystik (285 ) 10:31 pm, 13 Aug
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2590. |
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Where are you too Maewest? So you lot think |
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I do most of the talking on here aye??? I think perhaps thats right at times too. I love all you guys and chatting to you is high on my list of favourite things to do. I consider you are all my friends now, and I'm really chuffed that you noticed that I wasn't around to chat. Hope you have had a good weekend too..... Are you working tomorrow as well?? joystik (285 ) 10:33 pm, 13 Aug
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2591. |
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Joystik the kids come to ryans room |
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and I open the door so they can talk, we are in postive/negative rooms so when our door is opened all air is pushed out the door that way no bugs can enter. They are happy that they can see him and talk for a few minutes then they get bored. bogeyi (484 ) 10:36 pm, 13 Aug
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2592. |
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Hi Landylass, been a bit cold in Oamaru today?? |
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Seems like it was a bit chilly everywhere. The air is very bracing in Queenstown, to say the least, but it is lovely in the shops and the casino, so you lose sight of how cold it actually is. On TV 1 weather tonight, it said it was only 3 deg a 2.45pm and I find that difficult to believe actually. I would have thought more 8-10 deg. Maybe I have acclimatised already. Hope your tiredness is beginning to disappear by now. How is the knitting going? If the weather has bee suspect, then you have probably got heaps done. Take care and see you tomorrow. I've got a busy wee again with hospital visits, and will hopefully hear from the Real Estate Firm with their proposal! joystik (285 ) 10:38 pm, 13 Aug
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2593. |
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Ok bogeyi, that like the room where Josh is when |
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he's at Kew. The sterile air is pumped in, and there are double doors that keep the crappy air out. Nice the other kids can visit but yes, kids do get bored in the hospital environment. Even Lauren got sick of sitting their with me. She wanted to roam about and make heaps of trips to the cafe or the shop!! joystik (285 ) 10:43 pm, 13 Aug
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2594. |
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I was waiting for mae to come on also |
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just to say hi. But I am afraid the eyelids are starting to close.. so will say nite and look forward to this cold blast clearing the country real quick and better weather to follow. Hope your 7 hours went ok at work today Maewest rubbi5h (25 ) 10:43 pm, 13 Aug
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2595. |
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Oooops This would look better with my name |
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At the bottom .. sorry about that .. My daughter just came home and sat down at pc ... signed in to Trade me on her account ... then I took overagain not realising it wasn't me any more !!! Sorry just to say hi. But I am afraid the eyelids are starting to close.. so will say nite and look forward to this cold blast clearing the country real quick and better weather to follow. Hope your 7 hours went ok at work today Maewest farmerlloyd (24 ) 10:48 pm, 13 Aug
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2596. |
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See you again toorrow Farmerlloyd. Did you get |
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any snow today? We weren't here but I see something lying along side the bus tonight when we got home in the dark. Might be hail I thought rather than snow. What about the earthquake?? We didnt feel that either. Probably too busy watching what the pokies were doing!! Nite Nite.... joystik (285 ) 10:51 pm, 13 Aug
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2597. |
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have a good night farmerlloyd |
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....... bogeyi (484 ) 10:51 pm, 13 Aug
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2598. |
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Hi dize, no sign of you tonight either. I suppose |
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you will be busy hunting out all your summer clothing to take over to Aussie in a few days. I will see you tomorrow, and ohh....thanks for missing me too((((HUGS)))) joystik (285 ) 10:52 pm, 13 Aug
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2599. |
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farmerloyld |
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easy done . i did the same thing myself at mums when i was up there. kiwikaz3 (11 ) 10:54 pm, 13 Aug
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2600. |
|
thankyou everyone ... |
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No snow here Joystik .. My daughter drove through to Dunedin for the day and was so excited driving through Clinton area ... Snow covering Clinton hill and all around that part of the country ... we saw snow on the hilltops around Gore area but was " gone by lunchtime " !! ( did I really say that.. No!! Dr Brash said it first !!! But it's true .. Nite all farmerlloyd (24 ) 10:55 pm, 13 Aug
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2601. |
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Hello muzzr, and thanks for posting. The old |
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cancer thing seems to beat a terrible path through some families alright, like mine for starters. It pays to be on the lookout for it all the time, and especially if there is a family history. I would be hard to convince otherwise about family history. And with the incidence in NZ now being 1 in 3 there is a good chance that los of people you know will have it come visiting. Stay positive all the time and take care....(((hugs))) joystik (285 ) 10:56 pm, 13 Aug
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2602. |
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and Bogeyi |
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sleeping alone again !! will that be a good night? NO My wife and youngest daughter off to soccer tournament in Timaru till thurs... Once Claire goes back to her flat this house will run on BOY POWER only .... the mind boggles .. this time it is nite nite .. farmerlloyd (24 ) 10:57 pm, 13 Aug
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2603. |
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good nite all. |
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hubbys is up now so i am off he is going to have tea and hopefully not stay up to late. more snow around brrrrrrrrrrrrrr bring on the sunshine. dize i hope you bring some back from ozzie for us.. i may have to go over myself this week waiting to see how my friends get on at the specialist in brisbane. they will know when the op is, will go to give her some support as i dont want her there by herself. she has been such great support to me so now i can return the favour.. kiwikaz3 (11 ) 10:58 pm, 13 Aug
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2604. |
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That was certainly a well used phrase of DR Brash |
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wasn't it! Thats good, no snow for the poor animals. See you tomorrow....sleep well. joystik (285 ) 10:59 pm, 13 Aug
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2605. |
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You're lovely kiwikaz to do that for a friend! |
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Its such astressful and traumatic time for anyone, and you know what its like and have empathy for others. Nite Nite....sleep well. Tis a bit chilly tonight aye.... joystik (285 ) 11:01 pm, 13 Aug
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2606. |
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Hi trishm, thanks for posting and for saving the.. |
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thread. I also noticed that post and wondered about the significance of it. This is such a big responsibility to keep going while Sonia is out of the country. Hope she has the best holiday ever - she certainly deserves to have a lovely time.... joystik (285 ) 11:02 pm, 13 Aug
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2607. |
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Still no sign of you Boop?? Hope the earthquake |
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didnt do any damage. It was near Murchison I heard. Didn't feel a thing down here but it would have been a doozy in Buller, being that close. See you tomorrow....nite nite. joystik (285 ) 11:04 pm, 13 Aug
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2608. |
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hi nice to have you back joystick |
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It sounds like you had a lovely time and made a bit of money as well. I thought of you when they said 3deg. in Queenstown and snowing did Kevin cope alright? I think you are right about sonia she had an idea.It is pouring here at prsent. Did you feel that earthquake? I hate them.
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2609. |
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Hi Paula and Josh....so pleased you got to come .. |
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home today, but now I wont see you....DRAT!!. There will be other times. You must be busy tonight. Have you got lots of babies on the farm now?? Keeping your Mum busy too? I'm so pleased for Josh that he only got a minor dose of the spots! Has he made the elephant yet?? Have a good restful sleep in your own bed tonight at home with ALL your family. Love and hugs to you all..... joystik (285 ) 11:06 pm, 13 Aug
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2610. |
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It is so good to have |
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you back chatting away to us Joystik. We truly did miss you. I am busy catching up on odd jobs tonight, getting ready to fly out. We leave at 6.10 a.m. on Thurs. flying FREEDOM from Hamilton. Don't imagine there will be any hassles with hand luggage here, but wonder what the story will be at Brisbane when we come back. We are getting a rental car at Brisbane and driving up to Coolum (yes, its near Maroochydore and Mooloolaba - someone asked) and will have the week there. Even though I haven't been talking to you all much tonight, I am still peeping into this thread all the time!! Hope Sonia is relaxing tonight in warm Fiji. Night all.
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2611. |
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farmerlloyd is very chatty tonight |
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I think a team from Buller went too the soccer tournament in Timaru. Hope they have better weather than we are experiencing. night FL
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2612. |
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No Boop its clear here tonight and quite cold I... |
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think. I dont enjoy the earth moving in that way either. Funny thing we were looking out the hotel window this morning and Kevin said "I wouldn't like to be in here in a good earthquake, these pre fab concrete buildings aren't good in earthquakes"!! There was no snow in Queenstown and only drove through some falling on the way home so he coped OK. I'm off to bed now so see you tomorrow.....(((HUGS)))) joystik (285 ) 11:09 pm, 13 Aug
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2613. |
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Hi dize that trip sounds good |
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I hope you have a great time as well. They certainly have tightened up on security and were so lucky to catch those ones in Britain. Night dize catch you tomorrow.
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2614. |
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Nite nite Dize and Boop and Bogeyi and anyone else |
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still up and about, like kiwikaz and farmerlloyd, and Sonia might even look in.......Waves to Sonia in Fiji.....!! Might post a pic of us in the Gondola tomorrow if I can figure out how to scan it and upload it!! Tomorrows challenge.....I'll be up to it for sure.. joystik (285 ) 11:12 pm, 13 Aug
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2615. |
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I hate gondolas |
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they scare me silly went on the one at seaworld once, never again.
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2616. |
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kiwilaz how lovely of you. |
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where is landylass is she okay I hope her aches and pains are a bit better.Glad you enjoyed your night out.
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2617. |
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bogey that is great news |
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I guess you just take one day at a time but oh it is good to hear he is eating a wee bit.hugs and nite
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2618. |
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joystick my grandson |
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Braden is the 25th of August too, a great kid it must be the month eh?
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2619. |
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night maewest |
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can't wait up any longer. Hope you are okay. night
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2620. |
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night Janet will see you |
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tomorrow. Danny still progressing?I got a new kitchen catalogue on trademe last night there is a place in Auckland that delivers new ones all over NZ. Haven't checked it out yet.Some quotes we had were round 10.000 dollars and no way do we want to pay that.We have to invest in a new multi burner now and shift the hot water cylinder and discovered today that a part of our bathroom wall is rotten, another job. Our friend in CHCH has offered to come and do it he is a plummer so that is really good.Our rates went from 1200 to 1700 quite a hike. I think Buller had tyhe highest increase in Nz
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2621. |
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dont ya just love em |
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11.30pm and my boys awake saying i think im hungry, wodering what variation of toast he will have this time.. bogeyi (484 ) 11:34 pm, 13 Aug
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2622. |
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Oops, hi everyone |
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12....yes 12 hours today. It's taken me ages to catch up all your news today. Too tired to reply to you all but will be back in the morning. Bogey, great news about Ryan. Quite a breakthrough. Welcome back Joystik...we really did miss you. Boop, I felt the earthquake tonight too. Wasn't much, but still felt it. I don't like them either...who does!!! Kwikaz, glad you had a fun night last night. Do you good. Hi Janet, Dize, Landylass Farmerlloyd...you were busy on here tonight! And everyone else I have missed. Talk to you all tomorrow. Nitey nite XXXXXXX maewest (79 ) 11:34 pm, 13 Aug
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2623. |
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Oh Bogey that is |
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just so good. I am so pleased for you. Huge ((((HUGS))) to you both XXX maewest (79 ) 11:36 pm, 13 Aug
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2624. |
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Sleep tight Bogey |
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I am sure you will both sleep better now. XXX maewest (79 ) 11:37 pm, 13 Aug
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2625. |
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just come back to |
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see if you are all tucked in. Lots of toast for Ryan I love cruchy peanut butter on mine. Night again
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2626. |
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hi boop |
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nup still here we are watching cartoons.... bogeyi (484 ) 11:54 pm, 13 Aug
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2627. |
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I am feeling sad and stunned |
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a friend was diagnosed with lung and liver cancer in jan..my bestest friend breast cancer in jan she has had mastectomy chemo and is about to have radiation she had 9 lymph cancerous nodes ..and now my daughters 45 yr old MIL has been diagnosed she went for first free mammogram on Monday..recalled Thurs scan and biopsy on Frid she has a 9mm lump on the lower quadrant of her breast.She meets with the entire team on Monday to plan her treatment. she said Breastcare have been wonderful..what is a low grade cancer? cloffie (48 ) 11:59 pm, 13 Aug
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2628. |
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whoops |
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2nd friend diagnosed in March cloffie (48 ) 12:01 am, 14 Aug
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2629. |
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Morning all esp. to you Bogey and Ryan |
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Look Bogeyi, I was a bit too talkative last night wasn't I. I really am pleased for you that Ryan is making the progress he is. Very best hopes and wishes that you have some more good news to tell us with each few days. Ummmm and my night wasn't so bad thanks. I slept like a log the whole night long...ready now for the busy day , see you all later farmerlloyd (24 ) 7:10 am, 14 Aug
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2630. |
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Good morning everyone. Farmerlloyd, you are up |
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and off to your chores early this morning!! Rained quite hard here about 6.30, but stopped now and clearing awy nicely for a sunny day hopefully. Mid term break at Centrl Southland College today, so Lauren is sleeping in. Kevin had to have the truck at Vehicle Testing at 8.15 so no sleep in for us two I afraid. Have a great day wont you. joystik (285 ) 8:15 am, 14 Aug
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2631. |
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Hello Bogeyi and Ryan.....hope you managed a few |
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rounds of toast at 11.30. Sounds good tome that you are hungry and wanting to eat again, that means you are getting better and fast aye. Hope you had a good sleep after that and you too Bogeyi. Do you still have tests and other treatments to do daily now or is it just lying there and getting better now?? Sounds simple put like that doesnt it?? I have appointments with the Oncologist and the Radiologist tomorrow in at Kew, so that will be a busy day too.....talk again later.. joystik (285 ) 8:18 am, 14 Aug
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2632. |
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Hi cloffie and thanks for posting. Sorry the news |
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seems to be all bad at the moment. It seems to run like that at times. When the incidence is 1 in 3 you are sure to know lots of people in a lifetime that have or have jad Cancer though. I would presume that a low grade cancer is one in less danger of becomming a big problem. I think with Breast cancer there are 4 grades and the lower the grade, the easier to treat. Mine was a grade 3 so that wasn't such good news, but I am very positive that I will be fully cured in no time too. Stay positive........lots of cancer stories still have happy endings ((((HUGS)))) joystik (285 ) 8:22 am, 14 Aug
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2633. |
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Hi Maewest, do you have a day off today?? Or are |
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you starting work later in the day. It is a bit tiring reading thru 200 posts after a long day at the office aye? Did you get any snow in CHCH this time?? I heard that there was a good fall of snow in Otautau, where I live, on the news this morning. I dont know where it went cos there wasnt any left when we got home at 6pm. Cant always believe what you hear can you. Have a great day. joystik (285 ) 8:25 am, 14 Aug
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2634. |
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Hi Boop, hope all is well in Buller today. |
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You can certainly spend a lot on a kitchen if you have a mind too and a big cheque book. We have only put a small new piece, with 4 units, and a new bench and sink insert,and a new stove and dishwasher. That is along one side and the built in cupboards along the other wall we have just reapinted the same as the new cupboards, and put on the same handles to match. Looks great too. Got email from Sherri last night. They move over at end of September. She will be thrilled. Have you heard from her lately?? Have a good day wont you...... joystik (285 ) 8:28 am, 14 Aug
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2635. |
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morning farmerlloyd and joystik |
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Ryan has bloods taken twice a day they watch everything like a hawk, they are looking at his counts everyday and watching his kidney and liver closely as they have been high during treatment (alot of strain put on them with the meds) He is still on bucket loads of medications there is not 1 minute spare when there is nothing gong though his lines.
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2636. |
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Morning Everyone |
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wow its taken a while to read through the posts since last night!! Poor Sonia will have to read for days to catch up when she gets back. Weather is good here again today, just a bit cool, but sun is shining and birds are singing :)) janetmk1 (39 ) 9:12 am, 14 Aug
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2637. |
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morning janetmk1 |
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it is gross up here rainy and yucky. Ryans neutrophils 3.47 omg.......
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2638. |
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Boop thats way more than I want to spend .... |
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I have seen some nice units for a lot less, I think as long as your prepared to put them together etc. you can save a bit of money. I have just replaced the hot water cylinder and moved it downstairs out of the way as it was in the kitchen and took up too much room in there. Sounds like you are having to do all the same things we have to. janetmk1 (39 ) 9:18 am, 14 Aug
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2639. |
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Hi Joystik thank you for responding xxx |
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I have suggested my friend diagnosed on Friday link in to this wonderful thread.the love and support you have for one another is astounding.thank you.
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2640. |
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Hi Bogey :)) |
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you guys have a lot of rain don't you? Thats good that white cells are rising isn't it? janetmk1 (39 ) 9:20 am, 14 Aug
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2641. |
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morning cloffie although my son has a different |
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diagnosis we have alot of friends on the ward with ALL, also Paula when she comes on im sure will help answer any questions you may have......this thread rocks.
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2642. |
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farmerlloyd :)) |
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I don't think its a good idea leaving you guys alone!! Living in an all male house (even the cats are male, probably the fish are too) I wouldn't dare leave my house to them, it would be in pieces when i returned!! I brought a really nice floor lamp not long ago with beautiful tulip shaped glass shades and thanks to them having a cushion fight last night two shades were smashed. I must be used to it tho as all I said was "oh" janetmk1 (39 ) 9:26 am, 14 Aug
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2643. |
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Hello everyone |
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WEEEEEAAAARRRRREEEEE BACK.... Bogeyi - wow, that is great news. Still rising. WAHOO. Hi to everyone - thanks for your messages and love and support. Josh is looking good today, pretty weak and tired but we're ok! I actually made good use of the time in hospital and feel quite rested. I havent caught up on the days that I missed yet, but will try to - it is getting busier on the farm everyday now. I dont have to go down and feed the calves till perhaps Thursday then its will be full on. Love to you all. xoxoxoxoxxo
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2644. |
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Bogey |
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I am glad his neutrophils are rising, sorry for the ignorance, but how high do they need to go to be back to normal? janetmk1 (39 ) 9:36 am, 14 Aug
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2645. |
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Hi Paula |
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Glad your home, its really nice to have you back:)) janetmk1 (39 ) 9:37 am, 14 Aug
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2646. |
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normal range is 1.4-8.7 |
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they are really pleased so far
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2647. |
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Welcome cloffie |
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to this thread. We are all friends here, so feel free to share your sadness, have a vent, just say Hello, whatever. Your story is so very sad, but you will find support here. We actually have sun in Hamilton today!! It rained most of the night, so I hope I haven't put a curse on the weather by commenting on it. Have a good day everyone. Hope you have news of your new job soon Joystik. I will miss this thread like crazy when I am away for 11 days. It is amazing how many times during the day I pop over to the computer to have a "peep". Am I addicted? Probably. I am retired, so it doesn't matter!!
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2648. |
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Thats awesome bogey |
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hes doing really well!! are his white cells still increasing too? |
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2649. |
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Lol Dize |
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retirement is the beginning of the best years of your life :)) janetmk1 (39 ) 9:59 am, 14 Aug
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2650. |
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Bogeyi that is really good for the neutrophils.... |
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they can come back quite quickly once they begin to climb cant they. I know with mine I hade 0.2 one day and 1.9 the next. Anything over 1.75, I think they will give the chemo, thats in my case anyway. Is that the same for everyone?? Its all good news anyway. I thought things would be ever so busy where you are. Never a dull moment. I had to send the Queenstown pic by email, I think it was too big for on here. joystik (285 ) 10:03 am, 14 Aug |
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2651. |
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I guess I better... |
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get some housework done! Jordan has just started with vertigo, so its a month in darkness for him, hes not vomiting yet but can just feel it in his head that if he moves too quick or the light gets him he will get dizzy and vomit. Hopefully this afternoon he will be feeling a bit better and be able to eat a little as usually the morning is the worst and by late afternooon he can move around as long as the curtains are shut. I hope everyone has a good day, I will be back later :)) janetmk1 (39 ) 10:05 am, 14 Aug
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2652. |
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Was that another fifty just clocked up???? |
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Hi Paula and Josh.....lovely to see you back too. Sorry my phone cut out when you phoned on saturday. I knew we were in a marginal area, around Five Rivers, but wasnt quite expecting for it to happen so suddenly. Glad you are back home again. How many babies now?? How long does it take for them all to calve?? How many cows are there in the herd? Am I allowed fifty questions?? See you again soon..... joystik (285 ) 10:05 am, 14 Aug
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2653. |
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Happy house keeping Janet......I must go and do.. |
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some more too. I have got the washing done and the breakfast stuff cleared away but thats all. Poor Jordan, I hope he doesnt get too sick. Hows Danny today?? See you again soon...... joystik (285 ) 10:07 am, 14 Aug
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2654. |
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Hi Bogeyi, Janet, Joystik |
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Joystik - we have about 12 babies now, calving should be all over by October. It is great to be home alright!!! Hi Janet - here you go again with the trying time huh? Thinking of you . Bogeyi - awesome!!!!!! Your right - this thread does rock!!! xo paulaxx (78 ) 10:30 am, 14 Aug
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2655. |
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Wonder what its like in Fiji this morning????? |
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Bet its just lovely, and I hope Sonia, Brent and the girls are having the most fabulous time over there... joystik (285 ) 10:48 am, 14 Aug
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2656. |
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Good morning all |
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It is just freezing here today. Just had a txt from my son. They are sitting on the balcony of their unit in the sun on the Gold Coast eating bacon and eggs!! Could do with a bit of that!! I have got my beanie on....inside!!!! The head still gets a bit cold. Still in my jamas though! Had better go and get dressed soon. maewest (79 ) 11:14 am, 14 Aug
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2657. |
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Dize is there room in your |
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bag for me??? Only 2 more sleeps until you go? Lucky you. Joystik a snowy photo in The Press this morning of the road between Otautau and Orawia. Looks a bit chilly down there too. Farmerlloyd you will need to wrap up warm if you are out in you are paddocks today! maewest (79 ) 11:23 am, 14 Aug
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2658. |
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Paula |
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Welcome back. We have missed you. You will be pleased to be home to your own bed. Thank goodness it was only a mild dose of chicken pox. Josh will be pleased to be home too. Bet the XBox is getting a thrashing already! Keep warm and I hope the weather picks up before you have to get out there with the new calves. This weather seems to happen every year just when all the new babies are appearing in the paddocks. Poor wee things. maewest (79 ) 11:26 am, 14 Aug
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2659. |
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Hi Cloffie |
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You are going through a pretty miserable time at the moment. You were asking about low grade tumours. That is what I had but after surgery they discovered that it had spread to 3 of my lymph nodes. Hence chemo, radiation and Arimidex tablets. Your daughter's mil will probably be under Phillipa Mercer at Breastcare. I can only sing her praises. She will get the very best care there. Thank you for posting. Please join us here any time. It's a great place to have a vent and receive support. maewest (79 ) 11:30 am, 14 Aug
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2660. |
|
made the morning roll call for a change |
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great news bogey onwards and upwards. Joystick loved the photo Lauren has such a nice face you all look contented your kevin looks quite distinguished. Hi farmerlloyd are you a good cook and enjoy cooking for yourself? Nice to have you back Paula and Joshi. Hi dize we are surrounded by snowy hills today and it is certainly nippy.Hi Janet can,t they do anything for the vertigo my friend has it too but nothing like that. That ia awful for a young fellow. Maewest hi, that sounds great the bacon and eggs. Have you had snow falls around you as well. Hi cloffie it is cruel isn't it. I haven't cancer but lost my lovely sister last year and another sister has had bc she is a survivor , god willing.I have also lost my three friends one whose mum and mine were in the home together we were life long friends her and her sister were both dying of bowel cancer at the same time. It is in their family so many of them with bowel cancer.
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2661. |
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Hi Boop |
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no more earthquakes..aftershocks? What are you up to today? Can't wait til next month when we are coming over on the steam train excursion. I am going to take the Friday off work which will give me a whole week off work. Just had that brainwave last night while I was beavering away. Yay next 3 days off. Hmmm, one of those will be spent catching up on housework! maewest (79 ) 11:34 am, 14 Aug
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2662. |
|
yes Maewest she is under Phillipa |
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and so are my other two friends.I had a feeling that was how cancer was gradedthanks...you were saying about your boy on the Gold coast..I have two daughters living in Australia [both chefs] one working in Surfers the other in Kingaroy..have spoken to both of them today and they are basking in sunshine! cloffie (48 ) 11:35 am, 14 Aug
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2663. |
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Bogey and Ryan |
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good morning. Hope things are going even better for you today. What variety of toast did Ryan have for breakfast? Please tell him that salmon on toast is one of my very favourite foods..eat far too much of it. Yum! Janet that is really rough condition that Jordan has. Must admit I had never heard of it before now. Is there nothing that can be done to make it easier for him...and you? How is Danny today? You sure have your hands full. Kwikaz how are things in your world today? When will you know if you are going over to Oz to see you friend? You will be such a support to them having been there yourself. maewest (79 ) 11:40 am, 14 Aug
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2664. |
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thanks you ALL for posting for me. |
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boop yes it is rough..I am very lucky the monster has not attacked my own family..I can not even imagine where you girls get your strength from .The road you and yours have gone down are so rough an unfair..I dont wish to inject depression and pessimism into your thread..and I hope I havent. cloffie (48 ) 11:41 am, 14 Aug
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2665. |
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Boop you have been |
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through the mill. You have probably mentioned all that before but I had forgotten..chemo brain!! Do you find when you start typing about all that stuff that it brings it all flooding back? Try not to be too sad. (((Hugs))) to you. maewest (79 ) 11:43 am, 14 Aug
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2666. |
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Cloffie |
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not at all. By being part of this thread depression and pessimism are just not part of the equation. When we do feel a bit down we just come on here and those feeling just all disappear. Where do you live in Chch? I am out in Tuahiwi, near Rangiora. Work for First Direct Taxis in the dispatch room. maewest (79 ) 11:46 am, 14 Aug
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2667. |
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maewest i am in North new Brighton |
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I own a swimschool main client base is those with special needs..I lived in Rangiora for 18 years when my children were young! cloffie (48 ) 11:48 am, 14 Aug
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2668. |
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Landylass |
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Good morning to you. Hope those aches and pains are better today. Have you started the shawl yet. I have already unpulled mine twice!!!! Lol. I'm right now, but it is going to take ages. It takes about 10 mins to complete 1 row!! maewest (79 ) 11:49 am, 14 Aug
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2669. |
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Cloffie small world aye? |
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Is your swim school based at QE2? We transport heaps of special needs people and I know a few of them attend swimming there. Hasn't the Nth New Brighton area grown? maewest (79 ) 11:51 am, 14 Aug
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2670. |
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no maewest |
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i have my own indoor complex attached to my house..google miniswim and you will" meeet me" cloffie (48 ) 11:54 am, 14 Aug
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2671. |
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Wow Cloffie |
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you are amazing. What a rewarding business you run. Fantastic.I know all about you now...lol! maewest (79 ) 11:59 am, 14 Aug
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2672. |
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thanks maewest |
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cloffie it is good to have you here you can vent and say what you like and no one thinks any less of you .You have to have an outlet somewhere and this is the place.HUgs
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2673. |
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Had better |
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go and get organised. Start work at 2pm. Will pop back in tonight after 10.30pm. Have a lovely day everyone XXX maewest (79 ) 12:02 pm, 14 Aug
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2674. |
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maewest |
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i love what I do! must go now and do it right now! will catch up later.have to get in pool cloffie (48 ) 12:19 pm, 14 Aug
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2675. |
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catch you all |
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abit later on xxxx cloffie (48 ) 12:20 pm, 14 Aug
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2676. |
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Hi maewest and cloffie |
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You are most welcome to come and carry my bag maewest. Be at Hamilton airport at 4.30 a.m. Thursday. Is this a problem? (lol). Cloffie, my husband and I ran a milking machine business in Hamilton for 25 years and had a lot of business dealings with the Read family in Rangiora. They are still in business (Read Industrial) but sons and grandsons run it now. We retired 3 years ago, and the monster grabbed me last year (left breast) but we have killed it (surgery, radiation and now Arimidex). Lots of great survival stories on here.
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2677. |
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well i just had an experience that no parent wants |
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to see, Ryan has a drug ambisone mon,wed,fri over the lat couple of times he has had bad aches in his body starting in his legs working up his back to his arms, we pin pointed that it was this drug and the doc decided to run it over 2 hrs (as its painful). I went for a walk came back and ryan was crying (just started) within seconds hes screaming in pain he was on the bed crying and yelling he was just about crawling up the walls with pain, we stopped the drug as the nurse today didnt know he was getting pains with it before, doc came up and apoligised said that he forgot to put the plan in action for infusion over 2hrs. I have never seen Ryan like this beore it was just horrible, he was screaming he cant take the pain anymore, sobbing mummy mummy mummy (ryan never calls me mummy)and just sobbing with pain on my shoulder....god it was horrible he was pumping his morphine machine like mad but of course it only gives a dose every 5mins they had to give him tramadol took a good 5-10mins to work.
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2678. |
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Randal was here today so he got to see |
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it first hand, hes not normally here when someting bad happens..
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2679. |
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Oh Bogeyi that is just terrible. What a dreadful |
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to have happen to poor Ryan, just when he was starting to make really good positive progress. Someone forgetting to put a plan ito action can cause so much other stuff cant it. MMMMMmmmmmmm.......people!!!! Hope he's ok now and doesn't suffer anything to lasting, poor little chap. Give him a hug from me too...... joystik (285 ) 2:25 pm, 14 Aug
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2680. |
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Hey Boop, I must tell Kevin what you said!! |
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Thanks for your kind compliments anyway. You just get sat in that gondola and they poke the camera in the door and tell you to put your heads together and smile!! They usually come out quite drippy looking, but that one wasn't so bad really. Lauren looks quite like Gina did except different shaped eyes. Gina would have been 33 today........ joystik (285 ) 2:28 pm, 14 Aug
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2681. |
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Cloffie, your miniswim business is very........ |
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interesting. What a busy lady you are too, and a special person to work with disabled people. My SIL came from Kingaroy and I went over there for their wedding almost 30 years ago now!! I was their bridesmaid actually. Not many people even know where it is....Hope you're having a good day too. joystik (285 ) 2:31 pm, 14 Aug
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2682. |
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Hi Maewest, that picture was taken probably about |
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10 minutes drive west of here and the snow is quite heavy. But here there is absolutely nothing at all. But snow is known to be patchy isnt it. Its lovely and sunny here now too which is nice. I've just got back from a bike ride. Bit chilly round my chin!! See you later tonight..... joystik (285 ) 2:33 pm, 14 Aug
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2683. |
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Maewest, we had bacon and eggs yesterday morning |
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at the Heritage Hotel in Queenstown and it was delicious. Havent eaten bacon for ages and ages. Just usually stick to my fruit and cereal for breakfast and Kev has his toast. So it was a big treat. joystik (285 ) 2:35 pm, 14 Aug
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2684. |
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Hi Paula and Josh, I hope you are keeping warm |
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on the farm. Its lovely and sunny here just now and the washing has dried that I hung out side earlier. Might go out and clean out the glass house I think ready to plant it again. Hope you're having a great day..... joystik (285 ) 2:38 pm, 14 Aug
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2685. |
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Waves to Bogeyi.......Is Ryan OK Now??? |
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I hope he is. What a dreadful mistake for a DR to make. The treatment is bad enough without mistakes as well....... joystik (285 ) 2:40 pm, 14 Aug
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2686. |
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bogeyi |
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bogeyi what a dreadful thing for you and ryan to go through. hugs to you both. and i hope no more of that. kiwikaz3 (11 ) 2:56 pm, 14 Aug
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2687. |
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paula |
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hi to you and josh glad you are home nothing like your own bed is there. you are going to be busy with the animals and the kids do you still have your mum visiting?? kiwikaz3 (11 ) 2:57 pm, 14 Aug
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2688. |
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dize |
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i think your right this thread could be addictive but its so good to get such good support from everyone in here. i hope you have a great time in oz. kiwikaz3 (11 ) 3:00 pm, 14 Aug
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2689. |
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well i am off to |
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light the fire as the weather has just pooped itself again. keep warm people and catch up later in the day. sonia i hope you are having lots of sunshine and lazyness, kiwikaz3 (11 ) 3:02 pm, 14 Aug
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2690. |
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Joystik hes fine now |
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im having a strong coffee and hes eating chicken noodles and bread like they are going out of fashion, his mouth must be better. They have taken that drug off ryan and will start another one as he was getting pains before just not as bad as today......phew
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2691. |
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Bogeyi I m so pleased to hear that. Do you just.. |
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get Ryan food as he wants it, or does he ring the bell and someone get it for you?? Is there any sort of a set menu or can he have what he wants especially now he's not neutropenic anymore? Has the day improved there?? Its lovely and sunny here now still.... joystik (285 ) 3:30 pm, 14 Aug
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2692. |
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aw bogey |
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I am sitting here with tears running down my face that poor kid. I see he has improved a bit thank god for that. Big hugs bogey don't know what else to say.
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2693. |
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hi joystick |
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we eat a lot of bacon the only thing Malc can cook really is cheese and bacon on toast but sometimes I do bacon and egg for lunch. He can do more but hates cooking. I heard from sheri she is going to Charleston that is not to far away.Hope sonia is okay and really enjoying herself and those precious wee girls of hers.
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2694. |
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Hi dize and kiwikaz |
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what you doing today? I have just made casseroles steak and kidney with all the veges in. I usially do enough for two or three nights and then if I am busy outside don't need to worry about the meals. Does anyone live near Masterton? I have a meeting tomorrow about going up there on Waitangi weekend playing bowls. They have a maori tournament every year and next time it is up there. We only have three maori girls playing so they kindly asked me to join as you are allowed one pakeha in the team.We have to work out how to get there where to stay and all the costs. I will love it. Can stay on the Marae.
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2695. |
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sorry, usually is more like it |
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proof read I think.
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2696. |
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Yeah Boop they have bought the Motel there |
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at Charleston, and take over at the end of September. She hate Christchurch weather with a passion, and sometimes you cant really blame her can you. I love crunchy mouse traps with cheese'bacon and onion. I ordered one in Queenstown and it was made on a piece of bread about 1 inch thick which wasnt even toasted. Nearly gave me the flamin gripes! Do people not no how to even make a decent mouse trap anymore Boop???? joystik (285 ) 3:55 pm, 14 Aug
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2697. |
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Sorry, dont know anyone in Masterton.......... |
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staying in the Marae would be alright though, wouldn't it?? So thats this Feb coming up?? Sounds like fun. Is that outdoor bowls or indoor?? joystik (285 ) 3:57 pm, 14 Aug
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2698. |
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Poor Sonia if she had to come back and read |
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20 pages of new posts!!! We are almost at another hundy.....who is going to get it??? joystik (285 ) 3:58 pm, 14 Aug
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2699. |
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Are you still there Boop or Bogeyi? Or will I ... |
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just do it??? joystik (285 ) 3:58 pm, 14 Aug
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2700. |
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Special post for Sonia on the beach in Fiji....... |
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A big wave to Sonia and family....... joystik (285 ) 3:59 pm, 14 Aug
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2701. |
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me... |
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me
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2702. |
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That was a wave of the hand .................. |
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for Sonia and family too......a nice friendly one...Sorry Boop... joystik (285 ) 4:00 pm, 14 Aug
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2703. |
|
well done joystick |
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It is out door bowls I just love it. I wish I could lose some weight though I feel I am fit enough but not slim enough. Sheri should be happy there I mean CHCH is my home town but don't think I could tolerate the weather there anymore. My Husband is a great cooker of mouse traps when I =ask him to get lunch or tea for a change it is mouse traps. Wonder if he could get a job in Queenstown
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2704. |
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I am off to find a dvd |
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called aTown LIKe ALICe a lady was talking about it in another thread and I loved that movie especially with Peter Finch.
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2705. |
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bumping because we are |
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good,good,good,good,good,good
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2706. |
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We're GOOD alright Bogeyi!!!!! |
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Do you reckon we will have it to 5k by the time Sonia gets back??? joystik (285 ) 4:50 pm, 14 Aug
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2707. |
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worth a try i say |
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joystik..
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2708. |
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boop |
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I liked the more recent Town Like Alice with Bryan Brown in it, and I forget the name of the Aussie actress in it, but I thought the Peter Finch one was a bit dated. Someone in an earlier post mentioned Kingaroy in Queensland (joystik?). I know it well as I used to live at Nanango, quite close to it.
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2709. |
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Boop, we could all get a job in Queenstown just |
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right now. There was a notice on almost every shop wanting staff of one sort or other. The Heritage Hotel was wanting staff, and the wee waiter that was on our table was a french canadian chap who was just here working for the ski season and is leaving on friday. The Skyline restraunt at the top of the Gondola, had a big wedding party of 340 and only had 3 staff and couldn't get any more!! It always seems to be a problem, and some of it is because it is so expensive to live there. The wages wont be that high I bet. joystik (285 ) 4:54 pm, 14 Aug
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2710. |
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Oh Ok Dize it was probably me that mentioned it |
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earlier too. I have been to Nanango too. I liked it there actually, but have never been back. Might go again someday. Are you going to Kingaroy while on this holiday? joystik (285 ) 4:56 pm, 14 Aug
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2711. |
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a very good friend of mine is second in |
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charge at the casino down there he loves it..
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2712. |
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What's on everyone dinner menu tonight???? |
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We're having Roast Beef with roasted Spud, pumpkin, parsnip and Yams, and steamed rainbow silver beet, carrots and brussel sprouts. Got to have these bloods right tomorrow or no chemo on thursday!! joystik (285 ) 4:58 pm, 14 Aug
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2713. |
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Kool Bogeyi, he probably paid us out all our |
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winnings!!!! There are loads of Asians working in the business's, but thats ok, I dont have a problem with them at all..... joystik (285 ) 4:59 pm, 14 Aug
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2714. |
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go hard and go strong! |
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i am in tears after reading these messages all to do with your own personal cancer suffering and fights.... i cant imagine what you are all going thru esp. those young mums out there, its my worst nightmare. i live in palmy nth and if i can be of helpt o anyone im here. ps i have 2 kids aged 3 & 5. clcleggers (94 ) 5:01 pm, 14 Aug
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2715. |
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hi clcleggers |
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nice to see you in here, thats a nice offer from you....
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2716. |
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thegeza just in case |
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you want to come in
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2717. |
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Oooohhhhh joystik |
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I wish I was having tea at your house tonight. My mouth is watering!! No, not going to Nanango this time, just going straight up to the Sunshine Coast when we get off the plane at Brisbane, have a rental car waiting. We are going to the Eumundi Markets on Saturday, haven't been there before, they are famous. A girl (girl? lol - woman of 65) that I grew up with, is coming up to see us for the day on Monday. She lives in Brisbane so I am looking forward to that. Also my niece and nephew and their families are coming up from Brisbane on Sunday. We will do a lot of sight-seeing as well. We are taking a very dear lady friend with us too, she travels with us often. We eat out every night and just have a ball.
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2718. |
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Hi to you all- |
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Well here I am again been very busy for the last few weeks. House full of visitors and the baby is nearly here, only four weeks to go, so anti natal one night a week and midwife visits etc. So sorry to hear about Sonia's setback but she will be having a great time in Fiji my daughter just came back from there a few weeks ago and they loved it. Big day for me tomorrow with the secondaries, will be on the message board and let my good online friends know the results. How are all the children who have been so ill? I hope things went well for all of you. You are all in my thoughts. Will catch you all later going for dinner now and then anti natal. Cheers icarus1989 (483 ) 6:09 pm, 14 Aug
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2719. |
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Hi Icarus, lovely to see you again. You have been |
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very busy haven't you. Good luck for tomorrow. I will be thinking of you and will look out for what you have to tell us tomorrow night. I have appointments tomorrow with the Oncologist and the Radiologist, to discuss my up coming Radio therapy treatment in Dunedin. The Oncologist visit is just planning for thursday's Chemo Transfusion, that is providing the bloods are ok. The baby arriving will be a welcome distraction fom all this other stuff. There are a few on here doing knitting for babies at the moment. Do you know the sex of the baby yet?? I didn't want to know when I had my daughter, but lots of people find out early on now days. ((((HUGS))))) for you.... joystik (285 ) 7:09 pm, 14 Aug
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2720. |
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Oh well, dinner is eaten and was delicious....... |
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and the dishes are done as well. Ifmy bloods aren't up to scratch tomorrow I'll go he! I had such a pile of silver beet and carrots and roast beef, but one thing its all pretty healthy,so I dont feel quite so bad....... joystik (285 ) 7:12 pm, 14 Aug
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2721. |
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evening all :)) |
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well it was a nice sunny day till early afternoon and it turned to crap,rain,wind and cold. Sorry to hear about Ryan suffering in so much pain. That is so hard for a parent to see. I am glad hes feeling better now, drs are just human but when they make mistakes on your child its very hard to be understanding. janetmk1 (39 ) 7:13 pm, 14 Aug
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2722. |
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Hi clcleggers, and thanks for your lovely post.... |
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That was very kind of you to offer help to anyne in your area. I'm right down in Southland so you are a bit too far away from me. Hope you have ad a lovely sunny day today. We had sun for more than half of the day, which was much better than predicted. Look forward to seeing you again.... joystik (285 ) 7:15 pm, 14 Aug
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2723. |
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Hi everyone |
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I may have talked too much last nite .. but I have exactly 1 minute before i am out of here for a few hours ... will check in later on , hope all your news is good .. catch you all later farmerlloyd (24 ) 7:15 pm, 14 Aug
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2724. |
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Lol farmerlloyd |
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it was nice chatting to you last night :)) janetmk1 (39 ) 7:17 pm, 14 Aug
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2725. |
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Danny is back to .... |
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what has become a "Normal" life for him, but he sees the specialist tommorrow hopefully he can motivate Danny,hmmmm I doubt it though,it seems like a way of life hes content to carry on with :/ Maewest hows your partners son doing? janetmk1 (39 ) 7:20 pm, 14 Aug
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2726. |
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Jordans illness is... |
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they think related to migraines as opposed to the vertigo adults suffer with that is lose of balance in the ear.It started when he was a baby and he had a torticollis which they now believe was related. At 3 he developed the condition he has now(benign paroxsymal vertigo of childhood).He has seen many specialists but the only one who has seen it before is in chch. We saw him at christmas time and he had only seen another child with it as severe as Jordan. Various medication has been tried with awful side effects so they are now looking at bringing meds one from oz. Because it is caused by something in the brain they can't be sure it is related to migraines so I always get "I think" at the end of any comment. The one hope is they expect him to grow out of it at puberty :)) janetmk1 (39 ) 7:32 pm, 14 Aug
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2727. |
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Joystik |
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I didn't realise kingaroy was that close to gympie as I lived their 16 years ago. It was very cold there in winter and flooded quite a bit but I really loved the summertime on the coast. janetmk1 (39 ) 7:41 pm, 14 Aug
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2728. |
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Wow, I shouldn't miss a day on this |
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thread as it takes too much catching up. Hope Sonia manages to log in over there in the sunshine or it will take her a week catching up when she gets back. Somehow I missed the bit where she had the phone call from Oncologist. Just had a reread after seeing someone posted she had bad news. What a bugger after the battle she has already been thru, but she is tough and can get on top of this. landylass (48 ) 7:43 pm, 14 Aug
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2729. |
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Poor Ryan hope he is on the up |
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now Bogey.... what a thing to have to watch your child go thru. These kids are just true inspiration! {and their mums}. Bet you are glad to be home Paula. Seems to be appointment day tomorrow. I have to go to dentist to get the damage I did during chemo fixed. Might have to rob a bank afterwards! Maewest I haven't got the wool for shawl yet...just trying to finish another jersey & hat first. Haha you sound like me...knit 4 rows and undo about 10!!!! Nothing like a baby due date to make you get going!!!! Icarus good luck tomorrow. I have been knitting most of weekend but yesterday ventured into movies to do my first stint behind the counter since we took over. Both my kids were working so it was quite fun them training mum up!!! landylass (48 ) 7:50 pm, 14 Aug
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2730. |
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The aches and pains |
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are slowly getting better so the supplements must be kicking in. We thought we had missed the cold winter blast here but it really kicked in last night. Miss17 had a teacher only day today so we both sat over the fire, her swotting and me knitting all day today. Mr14 was not amused at having to go to school especially as it was pouring when he left for the bus! Joystik, any news on the job front yet.... great you had a good time in Queenstown. Good luck for the next dose of chemo. You are on the downhill now to the finish. landylass (48 ) 7:53 pm, 14 Aug
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2731. |
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I know how you feel Landylass.....I was away over |
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night to Queenstown and all sorts had happened. Yes poor Sonia isnt having a very good run, but she is a very positive person and she will fight this lot like she fought the last lot. I think she had a feeling things weren't good, like you do!! Well I certainly did, and I guess other people have that intuition thing going on. Hows the knitting progressing? Hope you have had a good day and have kept warm enough. joystik (285 ) 7:53 pm, 14 Aug
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2732. |
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god I dont think my heart can take much more |
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was walking out the room and looked at ryan and one of his pupils is dilated called the nurse in a hurry and she came and did obs and called the doc, all I can think of is brain bleed or something bad as his platelets are only 15..........one of the doctors asked does he have a scopeaderm (sp) patch on, yes he does so they think he has rubbed that and then his eye........god i hope so.But we are going down for a CT scan tonight....I feel i have aged 20yrs today.
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2733. |
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Haven't heard Landylass, the Principal had to go |
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away again. Hopefully he applied for my licence to practice before he left. I gave him my letter from the Open Polytech to say that I was qualified, and another letter from REINZ stating that I had to get a prospective employer to apply for my licence. He asked if he could keep those papers and put them with my other stuff. They were supposed to be working out a proposal for me which of course I will accept, probably!! It will be when he gets back seeing as he's the boss. I'm busy this week with appointments and Chemo on thursday! joystik (285 ) 8:00 pm, 14 Aug
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2734. |
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Bogeyi, that is awful!!.......... |
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Which makes two awful things that have happened today! Hope its all A ok with the CT scan.....Thinking of you and sending you big ((((HUGS))))) joystik (285 ) 8:06 pm, 14 Aug
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2735. |
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Bogeyi, Is a scopoderm patch an anti nausea |
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patch?? Just wondering but I think thats what it is. Hopefully what you said could have happened, IS what has happened. joystik (285 ) 8:12 pm, 14 Aug
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2736. |
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Landylass, do you own the Movie theatre in |
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town?? Sounds like a good thing to me. Get to see all the movies, lots of times!! Can you knit in the dark?? I must have miss some stuff about the baby. When is it due?? joystik (285 ) 8:14 pm, 14 Aug
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2737. |
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hugs to all |
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Wow i am saving this thread each day - just in case - I worry just in case it disappears and it would be awful to lose it all again. You guys are great you have posted over 200 in one day!! well done...hugs to all Trish |
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2738. |
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look at Ryans photobucket site and see |
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our newest family member. Joystik yes anti nausea patch, will update tonight once we go down, will call us sometime.
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2739. |
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bogeyi |
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You must be worried sick!!what an awful day your having, how long till the scan? janetmk1 (40 ) 8:22 pm, 14 Aug
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2740. |
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bogey |
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would you mind if i checked out Ryan's website? I don't want to intrude so no probs if you would rather not. I think of you and Ryan often...cheers Trish
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2741. |
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thanx Trish :)) |
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glad you are copying it,would be terrible to lose it all. At least now thanx to you Sonia can still catch up if it does disappear janetmk1 (40 ) 8:26 pm, 14 Aug
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2742. |
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thanks Janet |
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its a very small thing i am happy to do. It would be awful if we lost it while Sonia was away. I wish I could lots more for everyone here.
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2743. |
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ooops |
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i meant to say "i wish i could do lots more" lol
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2744. |
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Bogey |
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I just popped in and ended up reading all about bits I had missed in the last few days. I know how you are feeling. Hanging out to hear from you later. Hugs my friend..... (((((HUGS)))))
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2745. |
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Hi... |
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As I said just popped in quickly, been trying to catch up, thanks so much to you all for thinking of us over the last few days. Joshi so tired at the moment. Hosp phoned and we have to go to Gore tomorrow for bloods (they could have done them at Hosp GRRRRR) to see what his counts are doing. Christchurch want him back on that chemo asap. Oh man this is such a roller coaster! You guys are so amazing. Love to you all. Thinking of each and every one of you xoxoxoxo
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2746. |
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Oh bogey |
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What next? I bet your heart nearly stopped. Isn't it good that God made mothers strong, sometimes I wonder how you cope. It will be all worth it in the end, but we are all thinking of you and sending you love.
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2747. |
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Thought I would never have to post in a thread |
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about cancer... I have read through here and my heart is bleeding, my darlign fiancee was diagnosed 1 week ago with cancer... I am distraught.... thegeeza (25 ) 8:50 pm, 14 Aug
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2748. |
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thegeeza. |
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hugs to you and your fiancee what type of cancer does he have?? I am away to oz tommorrow to be with my friends for a few days the mothers are taking over here for me. my friends hubby is losing his eye. kiwikaz3 (12 ) 9:04 pm, 14 Aug
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2749. |
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I just love your newestfamily member Bogeyi!!! |
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I must admit, I was expecting to see a pic of a puppy though. joystik (285 ) 9:09 pm, 14 Aug
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2750. |
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Tell Ryan that him and I both have about the |
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same amount of hair now!! Have you shaved his or has it just fallen out?? joystik (285 ) 9:10 pm, 14 Aug
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2751. |
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Hi Paula and Josh...was wondering what you had... |
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been up to today? So another trip in for bloods? If you have to go to Kew, I will be there at 1.30 pm for my first appointment, and then 2.40 for my dsecond one. Might have to fill in the space in between at the cafe. It will take you ages to read a weeks worth of posts. Been thinking of you guys lots today and nearly gave you a call, but went away on my bike instead. ((((HUGS)))) to you all..... joystik (285 ) 9:23 pm, 14 Aug
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2752. |
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Hi Paula |
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Nice to have you back :))what a shame you have to travel with Josh so tired. How long does it take to drive there? janetmk1 (40 ) 9:31 pm, 14 Aug
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2753. |
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Hi kiwikaz, how long are you going to OZ for? |
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Thats a lovely thing you are doing for your friend at such a low time in her life. Hope you have a good trip and we'll see you when you get back. Thinking of you all and ((((HUGS)))) to your friend as well....Take care... joystik (285 ) 9:35 pm, 14 Aug
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2754. |
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Hi thegeeza |
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what type of cancer does your fiance have? janetmk1 (40 ) 9:38 pm, 14 Aug
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2755. |
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Hi Joystik |
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|
Was just thinking about your treatment tomorrow. Hope it goes well. Shouldnt have to come to kew. Whoops maybe I shouldnt have said that, dont want to tempt fate. I will be there on Wednesday though, not with Josh I got my follow up appointment from my mammogram and ultra sound. Hugs right back at ya - hope tomorrow goes ok.
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2756. |
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Hi Janet |
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How dya be??? Im going to head off to bed soon, trying to get early nights in even with mum here, although I am sure we could sit up and chat the night away. I know I have to stay on top of things and definately notice how different I feel without my sleep. Thinking of you too. xo
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2757. |
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Hello to you thegeeza, thanks for posting.... |
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I am so sorry and can understand the devastation you will be feeling. That feeling will pass, in time as you get in to finding out more about the condition, and the treatments etc and will be replaced by other feelings. Try to stay positive and ask lots of questions. Knowledge is power and thats what you need. Thinking of you both and sending you lots of love and ((((HUGS))))) joystik (285 ) 9:42 pm, 14 Aug
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2758. |
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For Sonia |
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Thanks for the text to let me know what has been happening with you. I hope you are relaxing and enjoying Fiji. I think of you all the time. love to you all xoxoxoxo
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2759. |
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Paula, I've just got the planning appointments |
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tomorrow and then the chemo on thursday, dont know what time yet. No, you wont be a Kew tomorrow, its not your turn!! You got more babies today?? Hows Nana enjoying life on the farm?? Is Teddy warm enough with his short hair cut?? You can get wee coats and jumpers for wee doggies. Perhaps he needs a wee tartan coat? I think about you guys heaps. Love and big ((((HUGS)))) to you all..... joystik (285 ) 9:45 pm, 14 Aug
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2760. |
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ok we are back and there is no obvious |
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signs of bleeding.....phew Doc thought there was no reason to put him through the trauma of injectiong the dye as nothing showed up......hes sitting here eating toast and a milo like all is normal
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2761. |
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Hi Joystik |
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mum is great. Do you know I havent even stepped foot on the farm yet. I know my time will come soon enough so I am making the most of just being back at home. I think Chris said 29 odd calved now. Nearly a row in the shed lol. The real estate agent gave us a hint of another couple of properties to have a gander at. Oh and do you know what - I think of you all the time too. xo
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2762. |
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Bogeyi |
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OH PHEW!!!!!!!!!!!!!!!!!! Thats a relief. Keeps us on our toes this journey we are on doesnt it. Love and hugs to you both xoxoxox
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2763. |
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I woke up this morning and I was 35 |
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I now feel 85, told ryan hes aged me today. Joystik i knew you guys would think its a puppy......just mother gone mad and nothing better to do. Trishm ryans site is www.caringbridge.org/ak/ryan if you go down the bottom you will find my email addy send me an email and i will invite you onto his photobucket site to..
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2764. |
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HUGE |
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Hugs for RYAN AND BOGEYI. Have a restful night and know we are thinking of you all the time too xoxoxoxoxoxoxox
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2765. |
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Bogeyi |
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I made three weird puppets for Cass whilst I was in with Josh last week. The things you do. LOL xo Mel is cute I bet he is as sweet as ;o)
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2766. |
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Bogeyi |
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Glad everythings fine with Ryan, kids do take it in their stride and let us do all the worrying!!Guess thats what mums are for :)) I hope you guys have a good nite sleep. janetmk1 (40 ) 9:57 pm, 14 Aug
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2767. |
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sent that pic to my family members |
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introducing the newest member, my sister emailed back great another person to buy birthday and xmas presents for, I told her shes easy to buy for justa shrp knife and some napkins...she emailed back MURDERER
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2768. |
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nite everyone :)) |
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I hope everyone has a good sleep.Hi maewest when you get back from work, sleep well :)) janetmk1 (40 ) 10:04 pm, 14 Aug
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2769. |
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Bogeyi, I am so pleased that all is well with your |
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Ryan. Thats enough to make anyone age 50 flamin years. I aged about twenty for you Bogeyi. Well, both of you need to have a good restful sleep after the day you have had. Thats where I'm hading off to now too. See you all again tomorrow sometime...Loads of love and hugs to everyone...... joystik (285 ) 10:16 pm, 14 Aug
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2770. |
|
Hope you have a good nights sleep |
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now Bogey.... tomorrow is another day and may it be heaps better for you. Kiwikaz have a good trip. I guess the fact you are going means its not been good news. When will you be back? Bugger you will miss her birthday on Thursday, but you gotta do what you gotta do. Just as well mum is there at the moment. Joystik perish the thought... no babies on way! Just got the knitting bug and got 2 stepsons married so guess it will happen one day. Takes me that long doing a shawl I thought I had better start early. Yeah we part own the local movies. I picked up the purchase contract for it after I had my mammagram then ultrasound and knew I needed more testing. Dashed to the lawyers then went back for my tests. Talk about a big day. We could have chosen not to go ahead with it but at that stage I didn't know I had an agressive cancer. I couldn't see any point in putting out lives on hold on a heap of maybes. landylass (48 ) 10:30 pm, 14 Aug
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2771. |
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joystik |
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busy night sorry, i am away till sunday i will be worrying bout everyone at home and miss out on miss 10s birthday day on thursday. will have to make it up to her next week. they bit upset tonite i going back to oz without them. bogeyi, glad you ryan is ok. tell him a joke what side of the chicken has the most feathers? Well its not the inside !! hubby was telling his nurosurgeon that one last time they where knocking him out. ( he said thats enough from you go to sleep) kiwikaz3 (12 ) 10:36 pm, 14 Aug
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2772. |
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landy lass |
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hello . gee sounds like you had a day like me crazy. been nursing a sick sheep, running round town getting 50 jobs done and now i am ready for bed head off in the morning. the cancer is in the eye and they remove the eye its a primary cancer and is quite large but enclosed he may not have to have any more treatment. kiwikaz3 (12 ) 10:40 pm, 14 Aug
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2773. |
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landy lass |
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not sure how it effects his vision for driving or if hes like hubby and no more not sure yet. kiwikaz3 (12 ) 10:41 pm, 14 Aug
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2774. |
|
anyways people |
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i am off to bed, i have kept meaning to put this into the thread to see what you all thought. have you heard of dr john holt in perth australia he uses radio therapy on tumors with alot of success. anyways i think he is retired now and they have continued his work google radion therapy institute in perth. seen him on tv just after hubby found out about the brain tumor. been doing it for about 30 years. and they want to investigate it further and continue his work. kiwikaz3 (12 ) 10:48 pm, 14 Aug
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2775. |
|
right im shattered and am going |
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to bed, see you all in the morning. bogeyi (484 ) 10:51 pm, 14 Aug
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2776. |
|
Have a good trip and take care... |
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|
the kids will get over you going on your own. At least you have been thru the mill in Brisbane and know what your mate is going thru. Good luck and don't worry about everyone at home... they will cope without you. Its only a few days. We had to delay Mr14 birthday this year for a week because of me having chemo and he was ok about it. You have now got an extra week to figure out what you are going to do for it! landylass (48 ) 10:52 pm, 14 Aug
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2777. |
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Hi bogey |
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you will be glad when today is over. I think I feel drained too after all Ryan has had today.night
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2778. |
|
Have a safe trip kiwikaz |
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Glad you are a bit better landylass. Joystick sounds like you have a busy day tomorrow. Thanks for the info Janet I understand it a bit more now. Dize have a great holiday and enjoy the sun. Thinking of you sonia
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2779. |
|
Everyone is running away to the |
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sun boop! Have you got over you shake rattle & roll? landylass (48 ) 11:07 pm, 14 Aug
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2780. |
|
hi landylass |
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yes I have it only lasted a minute but that was enough. They are all leaving us I am not going back to Aus until I see a bit more of the North Island never been to Auckland yet. Night landylass
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2781. |
|
Hi everyone |
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Finally home and now my turn on the computer.(He's been on it!) Haven't caught up the days news yet. Hope you have all had a good day. maewest (79 ) 11:27 pm, 14 Aug
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2782. |
|
BIG UPS TO YOU ALL!!! |
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Hi all. Ive just skipped through this thread, missed the 1st one...man it mustve been a doozy. Im a solo mum with two healthy children...occasional asthma. Im one of the lucky ones so far. All I have is an overactive thyroid. Although breast cancer is in my family. Two Aunts passed on. One fought hard after a masectomy, was well off and had reconstructive surgery, implant. The other wasnt financial, fell into depression. Gee, dont mean to sound grim. Just that its truly AWESOME to see the support out there. BIG HUGS TO ALL. Someone said SWORDS UP...SUMS IT UP! benhui (104 ) 11:44 pm, 14 Aug
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2783. |
|
Oh Bogey |
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|
What a day you have had. You are allowed to feel 85 after all that!Have a good sleep and hope tomorrow is a better day for you. Paula what a pain having to go back to Gore. You will be tired too. Some roller coaster you and Bogey are on. Warm (((HUGS))) to you both, and the boys of course. XXX maewest (79 ) 11:44 pm, 14 Aug
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2784. |
|
Hi there Benhui |
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|
thanks for posting. It certainly is a great thread. We have all made lots of new friends on here and the support is amazing. Please call in again. maewest (79 ) 11:46 pm, 14 Aug
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2785. |
|
Quikaz |
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|
have a safe trip across the ditch. Your friends will be so pleased to see you. And a birthday party to look forward to when you get back. We will miss you on here. XXX maewest (79 ) 11:49 pm, 14 Aug
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2786. |
|
Joystik |
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|
best of luck for this week. Man, you are nearly there. Hope your bloods are okay tomorrow..I'm sure they will be after that meal!! Hi Boop, the bowls trip sounds fun. Something to look forward to in the New Year. Icarus, good to see you back. Good luck for tomorrow. Look forward to hearing good news tomorrow night. Janet, thanks for the info. Roll on puberty! Paul's son is hanging in there...good days and bad days. He is still far from right and I do wonder if he will ever return to his former self.It's such a shame. maewest (79 ) 11:53 pm, 14 Aug
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2787. |
|
Good luck for chemo Joystik |
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|
Keep your beetroot and brocolli intake going!! And flax seed oil tablets. I know everyone has something to say about what to eat, etc, but I made an effort of these, and always had good bloods for chemo
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2788. |
|
Landylass |
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so pleased the aches and pains are getting better.It would be fun working at the cinema. Lol about the knitting!! Haven't had to unpull any today. I'm glad Ive got a few months up my sleeve...it's going to take that long to finish it!! maewest (79 ) 11:54 pm, 14 Aug
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2789. |
|
Meridian, when are you back? |
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Wanted to chat to you about the tram flap op. Getting mine done on the 20th Aug.
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2790. |
|
Hi there hardyro |
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|
so many theories about what to eat. Have heard about the beetroot thing. It's hard to find an appetite during chemo, although our darling Joystik doesn't seem to be having any bother with that! You go Joystik!!Well I'm off to hit the hay. Can hardly keep my eyes open. See you in the morning. maewest (79 ) 11:58 pm, 14 Aug
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2791. |
|
The geeza |
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|
Just be there for your fiancee, listening, shoulder to cry on is all important. Be strong, and even the strongest have their weak times. Make sure you have support, and let others not forget you. My partner has been fantastic, but has his sad times, and is too proud to ask for some support. Don't be. Also, my partner always says, "if we get through this, we can conquer anything".. Show us your stuff then, we can all get through this. |
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2792. |
|
I'm with Joystik |
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Didn't lose my appetite either with chemo. Ate everything! And put on 10 kg during treatment. All good reserve for upcoming surgery. Oh and plenty of tummy for new breast. Plastic surgeon agreed there was "plenty". Ha.
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2793. |
|
starting chemo today |
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|
well the day has finally arrived,and i have to tell you all I'm very nervous about it all.i was OK with the fact i had stage3 ovarian cancer but yesterday they told me I'm stage 4 (advanced)as it is now on my lungs.this blew me away and I'm feeling very fragile tears just a blink away all the time.i think my nervousness is all about the unknown .well i better start getting ready for the long trek to waikatio hosp.hoping everyone has a great day ,God bless you all.Angie
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2794. |
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good morning yawhwat |
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sorry about the news that its advanced I dont know much about treatment for ovarian cancer but we are here to support you in your treatment.Good luck for today..
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2795. |
|
Hi Yawhwat, Not such good news for you but it |
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could always be worse, so look on the bright side. Yes, its the unknown that scares us and makes us fragile at times. I have to say that I was very anxious going into my first chemo, but I have number 4 of 6 on thursday, and it really has treated me well, with almost no side effects. Try and keep up a positiveness as much as possible and you will fly through it all. Good luck and lots of love and hugs for today...... joystik (285 ) 8:35 am, 15 Aug
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2796. |
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Hi Kiwikaz, have a good trip today and we will see |
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you back sunday or monday. The family will be fine.....I will send them some ((((HUGS)))) to keep them going!! Take love and (((HUGS))) to your friend too. See you again soon... joystik (285 ) 8:36 am, 15 Aug
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2797. |
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Hi Bogeyi and Ryan...hope you two had a decent |
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sleep last night. Today is bright and beautiful here with a good white frost. I better hit the shower and then off to town for appointments. Have a good day wont you and NO more dramas today thanks. I cant afford to age another 10 years today!! joystik (285 ) 8:38 am, 15 Aug
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2798. |
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Good Morning Paula and Josh......Bet its beautiful |
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on the farm today?? Good luck with your bloods today Josh. Hope you all have a lovely day. Thinking of you all.... joystik (285 ) 8:39 am, 15 Aug
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2799. |
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Hi Dize, you will be doing the last of your packin |
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today ready to take off early thursday is it?? Hope its sunny in Hamilton today too.... joystik (285 ) 8:40 am, 15 Aug
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2800. |
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Another Hundy aye!!! How good is that...... |
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...... joystik (285 ) 8:41 am, 15 Aug
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2801. |
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Hi Landylass, sorry I jumped the gun a bit on the |
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baby thing! Just an asumption because you are knitting a shawl, but you're on to it, seeing as they take so long to do. Best of luck too with the movie theatre business. They seemed to always be busy when we lived there. It will be too sunny for knitting today though, you will want to be out side. See you again soon.... joystik (285 ) 8:45 am, 15 Aug
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2802. |
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good morning everyone :)) |
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lovely day here today. Just got Ryan to school, Jordan is still asleep thankfully,better for him to sleep as long as he can.Danny is off to the doctor and I have to agree with you maewest, I am starting to feel Danny will never be like he was and it is a big shame. janetmk1 (40 ) 9:05 am, 15 Aug
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2803. |
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bogeyi |
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I hope you and Ryan have a good day today with no more scares!! janetmk1 (40 ) 9:06 am, 15 Aug
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2804. |
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Paula, Joystik and |
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everyone with appointments today I hope they all end with good results. kiwikaz, stay strong for your trip, itsd going to be a tough few days for you. Dize have an awesome time in oz, wish I was coming to that warm sunshine coast with you :)) farmerlloyd,meridian,boop,landylass and everyone else I have missed have a great day :)) janetmk1 (40 ) 9:10 am, 15 Aug
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2805. |
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Sonia |
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This ones for you, hope your having a wonderful holiday, lots of love to you and your family xxx janetmk1 (40 ) 9:11 am, 15 Aug
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2806. |
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Hi Janet, hope today is a good day for you and the |
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boys. How are Jordan and Danny today? Hope all is well, and you have a great day.. joystik (285 ) 9:36 am, 15 Aug
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2807. |
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Janet |
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Hi my friend - thinking of you heaps. Just wanted to send you some love and hugs. ;o) Hope you have a nice day.
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2808. |
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Bogeyi |
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hope your night turned into a really restful evening and you got some decent sleep. Thinking of you all the time xoxoxo
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2809. |
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yawhwat |
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I see you are going to Waikato Hospital for your treatment, who is your specialist? I had Leanne Tyrie and she was lovely. Are you from out of town? Will be interested in hearing from you, as all this time I have been posting there has never been anyone else come on from around the Waikato. When I was having radiotherapy last year, they were doing 180 treatments EACH DAY at Waikato Hospital, to say nothing of all the chemo. THAT IS A LOT OF CANCER!!! It SUX.
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2810. |
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Maewest, Boop, FarmerLloyd, Meridian, Landylass |
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Dize5,Joystik and everyone else. Hope you have a really nice day, the sun is shining. Take care love to you all xoxo
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2811. |
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Hi Boop, never been to Auckland aye?? I've been |
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couple of times but must admit I didn't linger there too long. It was quite out of my league, being a bit of a country kid at heart. Much to busy for me. You will have to go one day just for the experience. Have a great day.... joystik (285 ) 9:39 am, 15 Aug
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2812. |
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Thanks Paula and to you to.....a sunny happy day |
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that is.....love to you all, even teddy!! joystik (285 ) 9:40 am, 15 Aug
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2813. |
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Hi maewest, you'll be at work with your knitting |
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by now! I'm just waiting for my washing to finish so I can get it on the line before I go to town. Take care and smile! joystik (285 ) 9:41 am, 15 Aug
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2814. |
|
Farmerlloyd, you must be flat out with your farm |
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chores this morning. Hope you have a good day too.... joystik (285 ) 9:41 am, 15 Aug
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2815. |
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Hi Dize5 |
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yes I'm off to Waikatio as soon as my other half gets out the shower.My Dr is Ian Kennedy and he seems very nice.we travel from Taumarunui to the hosp so its quite a trek.well i really have to go so ill post when i get home tomorrow and tell you how it was.Angie
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2816. |
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Hi everyone |
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So much to catch up with! Lots of tears for lots of setbacks :-( My brain is far too fuzzy at the moment to remember all the bits I wanted to post as I read through. Poor little Lenny woke in the middle of the night with earache, and he took four hours to settle. He still has a sore ear now, but in the light of the day is a little happier. There is a large amount of waxy discharge from his ear. Will take him to the doc to get it checked out. meridian1 (300 ) 9:54 am, 15 Aug
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2817. |
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Good morning everyone |
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Snap Meridian. We need to take notes as we are reading through all the posts! You will be tired today after not much sleep. Hope the doc can get the ears sorted out for you. maewest (79 ) 10:00 am, 15 Aug
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2818. |
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bogeyi |
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You must have been absolutely beside yourself with worry. I think the hardest thing in the world is to see your child in pain! My love to you and Ryan!! I have so much respect for you girls with your sick boys (bogeyi, paula, janet ...). I thought last night with Lenny was bad, but it's not a patch on what any of you girls go through on a daily basis. I am so glad that Ryan seems to have turned a corner (apart from the last two nerve-racking events). xxxx meridian1 (300 ) 10:01 am, 15 Aug
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2819. |
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Hi Maewest |
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He is a lot better this morning. Unlike his sister, Lenny doesn't complain when he is unwell, just gets on with it usually, so when he does complain I know he is really hurting. It's good to see him smiling this morning. Still in his jammies. meridian1 (300 ) 10:03 am, 15 Aug
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2820. |
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hey dize1 what a small world ! |
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one of the Read sons purchased our house in Charles Street in Rangiora when he was a newlywed in the 1980s..we moved to Ashley just out of Rangiora! cloffie (48 ) 10:03 am, 15 Aug
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2821. |
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Lots of people |
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with appointments/treatments today. Joystik those bloods should be fine after that HUGE meal last night! Josh and Paula..bloods for you too. Hope its all goes well. Why didn't they do that before they sent you home from hospital? Yawhwat, not such good news for you. Try and stay strong...I know that's a hard thing to achieve especially when going in to first chemo. Hope it all goes well. You have probably left already but I found chewing gum helped while the chemo was being administered.Some of them affect your taste buds instantly. Look forward to hearing from you tomorrow. (((HUGS))) to you all maewest (79 ) 10:04 am, 15 Aug
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2822. |
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Hardyro |
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I'm back now if you want to talk. meridian1 (300 ) 10:04 am, 15 Aug
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2823. |
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re my friend newly diagnosed with BC |
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I tried to link the friend up that has already had surgery and chemo ..due for radiation with the newly diagnosed one and sadly she appears not too keen to meet her..I hope that changes because ND has so many questions. cloffie (48 ) 10:06 am, 15 Aug
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2824. |
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Cloffie good morning |
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that is a shame. Your newly diganosed friend is probably still in a state of shock..it rocks your sock off! She will probably come round to talking to your other friend as time goes on. On our road (Tuahiwi) there are three of us within a 4km stretch and 2 others that I know of (Ashley and Kaiapoi). There are probably heaps more too.Scary stuff! maewest (79 ) 10:10 am, 15 Aug
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2825. |
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Bogey and Ryan |
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A very good morning to you both. Hope all is well in Room 10. What's on the toast this morning? What's the favourite? Hope today is a good one for you both (((HUGS))) maewest (79 ) 10:11 am, 15 Aug
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2826. |
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Sonia Helloooooooo |
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We miss you already. I hope you are having a wonderful time with your family in sunny Fiji.XXX maewest (79 ) 10:13 am, 15 Aug
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2827. |
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Righty ho |
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Off to the doctor at 11.15 with Lennon. Better get him dressed I suppose. Talk again later! Love to you all. meridian1 (300 ) 10:16 am, 15 Aug
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2828. |
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Hi Janet |
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Yes we alway hope that these boys will fully recover from depression. It is just such a long, slow road. Sometimes flashes of the old spirit come through, so there is hope. I still think the biggest problem is keeping them occupied, but they have no motivation to anything. Josh has been a couple of times to a local rest home and helped with games etc. I can't imagine what is must be like living with vertigo. How does Danny cope with it? Does he phsyce himself up when he knows the condition is about to return? And how does Ryan cope with it all? (Sorry about all the questions!)Have a lovely day Janet. Think about you heaps (((HUGS))) maewest (79 ) 10:21 am, 15 Aug
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2829. |
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Hiya Boop |
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What are you up to today? I'm going to get over there and visit you one day...look out!!!Still overcast here. Hope the sun pops through later. You have a lovely day whatever you are up to. XXX maewest (79 ) 10:23 am, 15 Aug
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2830. |
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Farmerlloyd |
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I guess you are busy with your sheep. Sounds like you have better weather for that today.I bet you have the best kept flock in Southland! Front page of The Press today..big pics of neglected calves and sheep. Would make you cry. www.press.co.nz if you can stand to have a look. You have a loverly day too. maewest (79 ) 10:27 am, 15 Aug
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2831. |
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hi maewest |
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I am here I think I et up later than everyone else(lazy)Watch the eggheads in the morning and one Question was who said"why don't sometime you come up and see me"no need to tell you who I thought of.What a glorious day here in the Buller I will go out and do something, Have a great day.
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2832. |
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Hmmm looks like |
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I'm talking to myself. Off to get dressed and enjoy a day off. Housework...ugh! Gotta be done though. Talk to you all later XXXX maewest (79 ) 10:28 am, 15 Aug
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2833. |
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I am here I am here |
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waves to maewest
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2834. |
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Boop, there you are |
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Haha. Yip she said some profound things.....profound? Yes!!!I have just got to find some energy to get on with things. I would rather just sit and knit at the moment!! maewest (79 ) 10:32 am, 15 Aug
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2835. |
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Waves back |
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Oh bugga the housework. Just made another cup of tea. I like slothing around in my jamas!!! maewest (79 ) 10:33 am, 15 Aug
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2836. |
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Hi every one |
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Hope our wee Ryan is good today and bogey gets too look 21 again.Hi Paula and Joshi missed you two so nice to have you back.Hi landylass hows the aches and pains. hi Janet how is Jordan ? Lets hope Danny gets a good report.Meridian nice to see you sorry about your wee boys ear that is so damn painful. Hi farmerlloyd and his sheep I bet the sun is shining on them today. Joystick will miss her bikeride today.
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2837. |
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I have to move too |
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I can see the other half looking at me thinking are you still sitting there
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2838. |
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Haha Boop |
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tell him to look the other way!!!He could be outside looking for a new place for his bbq!! Lol!! maewest (79 ) 10:37 am, 15 Aug
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2839. |
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yawhwat |
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not very good news for you but there is so much hope on here hold that sword high and fight. Good luck with your treatment. Hugs
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2840. |
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ha ha that's a good one |
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He is 5feet deep in a hole out there we discovered a pipe that is leading no where and it flooods our back yard. Never ending here.
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2841. |
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I will go out and do some potting up |
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Enjoy the sunshine
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2842. |
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Boop sounds |
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a bit like our house. Just after we moved in we ended up with sewerage coming up. (we have a septic tank). Weed matting had gone into the drain and blocked it...ugh!!! maewest (79 ) 10:45 am, 15 Aug
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2843. |
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oh! Boop you have sunshine |
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that is warm enough to allow you outside? we have sunshine but its COLD as!lol cloffie (48 ) 10:48 am, 15 Aug
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2844. |
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Hi Maewest :)) |
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Danny has depression and Jordan has the vertigo, Ryan is totally understanding as he was so sick for 5 years himself. Jordan is still asleep which is a good thing as the daylight triggers the vertigo so I let him sleep as long as he can :)) Danny went to see the dr today and the dr wants to see me next month to discuss his progress. Apparently the drugs are doing their job and hes happy with Danny's progress as far as the drugs go. The next step is for Danny to see a psycologist to get counselling and guidance to get his life back on track. Does Josh go to a doctor? The man who sees Danny is a brilliant dr, he treated me for PND when Danny was a baby, hes about 60 now and is blind so you don't feel threatened by him at all. I still have that feeling of will he ever be the same? I guess its just seeing them so severly depressed its hard to imagine them back the way they were. janetmk1 (40 ) 10:53 am, 15 Aug
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2845. |
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Enjoy the sunshine Boop!! |
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It was sunny here!!! It really was!! Its gone very cold and cloudy now, so I am staying by the heater :)) janetmk1 (40 ) 10:56 am, 15 Aug
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2846. |
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I am by my heater too Janet until |
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I have to get into my pool soon but thats okay cos it is 35 degrees..getting out is the pits though!lol cloffie (48 ) 10:58 am, 15 Aug
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2847. |
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Good Time to be in Fiji |
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its too cold here!!! janetmk1 (40 ) 10:58 am, 15 Aug
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2848. |
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mmmm! |
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I hope Sonia is lapping the heat up! cloffie (48 ) 10:59 am, 15 Aug
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2849. |
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LOL cloffie |
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I should be doing housework but its too cold to move!! I love swimming, must be great having the pool at your home :)) janetmk1 (40 ) 11:00 am, 15 Aug
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2850. |
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Bump |
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50 for Sonia :))) janetmk1 (40 ) 11:03 am, 15 Aug
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2851. |
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janet i have to admit I dont do a lot of |
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swimming in the pool just for me because I am in the pool running swimming and hydrotherapy sessions about 27 hours every week.kinda puts puts one off getting in just to slosh around he!he! cloffie (48 ) 11:17 am, 15 Aug
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2852. |
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cloffie |
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I just had a nosey at your site, I can imagine it would take the novelty out of just getting in the poolk to relax. Its a great business you have there. Would have been wonderful for one of my sons when he was ill.I imagine it would be very rewarding working with special needs children,you must have a lot of patience :)) janetmk1 (40 ) 11:43 am, 15 Aug
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2853. |
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For Yawhat |
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I also have Ovarian Cancer. Two years next month since I was diagnosed. Having Onocology appointmant today re secondaries. Hang in there and put up the sword to fight. I had a round of Chemo and then several months in remission, if you want to contact me my addy is hellcell at slingshot dot co dot nz. I would be happy to talk and I have some great websites to look at. Love and hugs to all the rest of you wonderful people. Will be back tonight when I hope to have more news. Cheers icarus1989 (484 ) 11:57 am, 15 Aug
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2854. |
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Poor little Lennon |
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his eardrum has burst. At least he's feeling better now that the pressure has been released. Can't chat right now unfortunately - kids to look after - will try to check in later. Oh, I had 3 under 5yr olds and Lennon (5yrs) at the doc. Talk about being proud of such well behaved boys!!!! I think everyone was looking at them thinking 'what little darlings', and they were! meridian1 (300 ) 1:22 pm, 15 Aug
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2855. |
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yes Janet |
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we laugh, we cry, we learn, we swim ,we exercise, I have a fantastic network and ongoing relationship with physios OTs Drs Spec Ed Early Intevention Centres such as the Champion Centre..we can often get the children to do in the water what they either cant do or won't do on land..
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2856. |
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Just bumping |
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for all you wonderful people. Josh is outside in the sun having a wee ride on his sisters bike - I love it!!!!!!!! Hi Cloffie, Janet,Meridian, Boop hope you are having a nice day ;o) to all you others hi too xo
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2857. |
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Meridian |
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Poor little chap. Oh that must have been so sore hugs to you and I bet you were proud at the DR's xoxo
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2858. |
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Maewest |
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Those were my thoughts exactly - why didnt they do the bloods in the hospital and save him that!!! Thanks hun, hope you are ok. Thinking of you xo
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2859. |
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Hi all |
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some kind person has directed me to this thread ...My partner's Dad turns up today, starts chemo for lung cancer tomorrow (he has to stay with us for treatment coz he lives too far away). He went to appointment on his own and only stayed there for 20 minutes and has no information for us. I asked my partner to ask dr what we need to do to be prepared but he didn't even see the dr! I'd rather be as ready for him as possible but my partner seems to still be in denial and doesn't want to know. Can anyone help with what I could expect after a first run of chemo? He's having it mainlined in and it will take a few hours to do (that's all the info I have). I'm a bit freaked out because I have so little information about what to expect. Thanks. christyw (178 ) 2:17 pm, 15 Aug
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2860. |
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Hi Paula!! |
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hope Josh is feeling much much better now .what a wee warrior he is!
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2861. |
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Paula |
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Just a wee check-in before I go and pick Phoebe up from school. Great to hear Joshi is having a bit of physical play, he must miss that with getting tired so quickly. I'm so so glad the chicken pox didn't cause him too much problems! Cloffie is right, he's a wee warrior all right! Love to you all!! meridian1 (300 ) 2:35 pm, 15 Aug
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2862. |
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Cloffie |
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had a wee look at your website earlier. What you are doing sounds so awesome!!!! Great looking website too! meridian1 (300 ) 2:36 pm, 15 Aug
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2863. |
|
thanks meridian |
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the web designer did a great job.there are usually only a designer and a script writer ..but in my case there were 5 or 6 of them working on it..they were so taken by what we do.they even got into the pool with us to experience the joy first hand..they [the webbies]were fighting over photos..each child that comes here has their photo taken and we have a lucky dip every now and then to put one on the website! They literally lived in my business for 6 days.and what you see is what we are thanks to them!
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2864. |
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Christy don't freak. |
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While I was out of town having radiation there was a guy staying where I was that had lung cancer. He had a whole day of chemo as well as radiation on top and then had a lesser dose of chemo with radiation for the following two days. He was tired and after his big dose of chemo he felt a bit sick and didn't want to eat. They will give him anti nausea drugs to take. Its important he takes them and doesn't wait until he feels he needs them. They say drink heaps of water with chemo too. If you have any concerns ring one of the oncology nurses. Everyone reacts differently to chemo. Good luck, you are not on your own. They should have given him some information on the chemo drugs he is going to get and the expected side effects from them. landylass (48 ) 3:07 pm, 15 Aug
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2865. |
|
Finished my jersey and hat |
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last night and got it away in the mail today. Only trouble was Miss17 decided she wanted one too so got some wool in town this morning and just finished it. Been to dentist and I didn't have to rob the bank! Numbness is finally just wearing off. Stupid time to go to dentist just before lunch. Was a milkshake with yoghurt in it for todays as I couldn't eat! Off now Maewest to order some baby wool to start this shawl. I've been knitting 12 ply mohair on big needles so going to be a shock going back to 3ply and fine needles! landylass (48 ) 3:10 pm, 15 Aug
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2866. |
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Joystik have you got the bubbly |
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on ice ready to crack open when you hear about that job? Good luck with chemo tomorrow, not that you will need it. Hope everyone else is having a great day. Cloudy and cool here today, not the promised sunshine. Yah I am feeling even better today so those supplements must be working! landylass (48 ) 3:11 pm, 15 Aug
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2867. |
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Landylass, that's great |
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that you are feeling better.I am having a break from the knitting today...it's not doing my 'tingly'hand any good! That shawl I'm doing is 3 ply but on no 8 needles, so not too bad. I told you I picked the easiest one in that book!
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2868. |
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Paula you will be |
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delighted that Josh is outside haveing a play and getting some fresh air. Long may it continue. How are you feeling? Thinking of you XXX
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2869. |
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Cloffie great to see you on board |
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here. Haven't seen any of Mr Cloffies antics on the mb lately, has he been behaving himself or keeping himself busy in his shed? Mind you it takes me that long reading this thread every day I don't read many others. Tell you friend to get hold of the 0800 Cancer Society No, [check their website] and they can put her in touch with someone that has been thru it. My sister and aunt had been there but I had contact from someone up the North Island just over the phone and found it great to talk to them. I have just had a blood test for genetic testing done and my aunt in particular thinks I am nuts. I think people get through there treatment and start to get on with their lives and don't want to go back there again once they are finished. landylass (48 ) 3:15 pm, 15 Aug
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2870. |
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Cloffie |
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the web designers sure did a great job. How neat that they spent so much time with you. It shows in the end result. Pretty grey here today. Was hoping for a lovely sunny day!
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2871. |
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Meridian |
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a burst eardrum...ouch!!!! You would have been so proud of all the littlies at the drs. It must be because of you!! Well done.
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2872. |
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Janet |
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sorry I got your boys names mixed up! I knew that it was Danny with the same problem as Josh! Oh this brain...will it ever improve???!!!Hope your day is going okay. I'm getting through the housework in bursts (small ones!!). Getting there.
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2873. |
|
thanks landylass I will do that |
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I have a feeling that my other friend will eventually talk to her. all this talk of shawls maewest! brings back memories of when the cloffiettes were little!I use to take in crocheting to make a bit of money as a SAHM mum dear me I made hundreds of the darn things!along with all sorts of other goodies as well.aw poor wee one with a burst eardrum.nasty nasty! meridian
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2874. |
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Christyw |
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a shame you are not armed with all the info you need. I can only reiiterate what Landylass has already said. Lots of water and make sure he takes the anti nausea meds. Everyone reacts differently to chemo. I worked right through the 4 months during my treatment, taking 3 or 4 days off immediately after chemo. He will probably sleep lots too.Oh, and he might become a bit cranky too!!
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2875. |
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awww bum! |
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have to go and get in the pool now! will catch you later..enjoy the afternoon sun you luvviliees!lol!
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2876. |
|
Afternoon ladies!!! |
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Just popped in to wish everyone a lovely afternoon. Wishing all who are fighting the monster & their families lots of strength and heaps of warm fuzzies!!!! Take care, thinking of you all! xoxoxox
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2877. |
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Thanks |
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if he's been given any information he hasn't passed it on to anyone else. He's already an extremely cranky person so it's going to be a very tough time for us. Nobody can tell him what to do, he's extremely stubborn. christyw (178 ) 4:30 pm, 15 Aug
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2878. |
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HI guys |
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John has testicular cancer... lucky I guess? Surgery on Thursday, so we will see how we go from there... i hate it... i hate it, i hate it...I make myself sick over it! thegeeza (25 ) 4:35 pm, 15 Aug
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2879. |
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Hi everyone, what a busy day all round! I had to |
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visit the radiologist from Dunedin, and it was Dr North. Landlass, he was very nice and informative and reassuring too. I have to go up for 25 treatments now instead of the 15 they thought initially. Mainly because I had too many lymph nodes involved and they would rather be safe than sorry at this stage. I can live with their decision ok. Also they want to give the nodes in the side of the neck a good blast while they're at it, because those ones cant be removed surgically. So I will go for a mark up about the first week of October and start either the week of the 16th or 23rd October if all goes to plan. joystik (285 ) 5:32 pm, 15 Aug
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2880. |
|
My second appointment was with the Oncologist.... |
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Dr Perez. He is very pleased with my progress to date and isnt going to bother to see me again now until my last treatment. He is still amazed at how I have handled the whole thing, but I told him it takes a fair bit to knock me down!! It was all a good day actually and the weather..... well........SOUTHLAND ROCKS!!! joystik (285 ) 5:34 pm, 15 Aug
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2881. |
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Good on Josh, out riding his bike. Maybe we can |
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meet up somewhere and go for a ride together??? I love riding my bike out in the sunshine and fresh air. Thanks for your email Josh.....that was a lovely surprise. ((((HUGS)))) to you and everyone at your house. joystik (285 ) 5:36 pm, 15 Aug
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2882. |
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Hi meridian, sorry to read about your wee man.... |
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hope he gets better real soon. I can imagine what your kids were like at the DR's. I used to take 4 under 4's with me everywhere I went too, when I was caregiving. You sure do get lots of comments and most often good ones. (((HUGS))) to you all there.... joystik (285 ) 5:40 pm, 15 Aug
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2883. |
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I will have to come back later sorry everyone.... |
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haven't been home from town long, and the neighbours son came over and wanted me to put something on trade me, then I had to go and take a pic for him, now I have to get dinner cos I have visitors at 7pm and will be missing Coro. I hope there are some Coro fans on here that can up date me on the wedding!! See you all later... joystik (285 ) 5:42 pm, 15 Aug
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2884. |
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Thats great joystik that you have |
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been given some dates. 25 seems to be the going rate that most have, and you will sail thru it after the way you have handled chemo. landylass (48 ) 5:57 pm, 15 Aug
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2885. |
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Hi Joystik |
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|
Reading your updates remind me of my treatment. I was able to work through chemo, never sick, just a bit tired. I am an Otago girl, and live in Chch, and said that it was the Otago blood in me. Radiation is not as bad as chemo, so is tolerable. How many lymph nodes do you have involved?
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2886. |
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ooohhh! |
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|
is the wedding tonight!!!!joystick
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2887. |
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Radiation treatment |
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I know we all get told lots of things what and not what to do, but a friend told me to use rosehip oil on skin between radiation treatmens and prior to radiaition. This nutures the skin if it needs to heal if skin breaks. Aqueous cream kept in the fridge is nice and cooling on radiation area, just like sunburn, but it skin breaks it hurts!!! Mine did, and had a few days at home because I couldn't wear a bra!! If skin breaks, keep nice and clean, and soak in a bath with a cup of table salt dissolved in it. Great for healing.
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2888. |
|
Ginger beer for chemo |
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Oh and another "hint", I am starting to sound like Aunt Daisy. But if any help anyone out there, that has to be a good thing. For that nausea / could be sick feeling, sip ginger beer, even slightly flat ginger beer. Refreshing for mouth, and settles tummy.
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2889. |
|
Christyw |
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|
Sorry to hear about your partners Father. Men of that age usually decline an offer for someone to come to chemo, oncologists etc. I am quite an independant person, and my partner insisted that he come to my appointments, where I was ok that I could go on my own. Just having another set of "ears" at the appointment helps. Any questions you need answering, write them down for the next appointment cause we all have "blanks" when we are there. That is their job to tell us, so get them to earn their money. Be strong and support him through this journey. He will need it.
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2890. |
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Maewest |
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No worries about mixing my kids up its too hard to remember every detail on here:)) janetmk1 (40 ) 6:40 pm, 15 Aug
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2891. |
|
Paula |
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Its great that josh managed to spend time on his bike in the sunshine. Always nice to see the kids do some normal kid stuff :)) janetmk1 (40 ) 6:42 pm, 15 Aug
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2892. |
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Meridian |
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I hope your sons ear has settled down now. It must have been agony for him when the eardrum burst.I bet the kids all looked cute sitting there at the doctors :)) janetmk1 (40 ) 6:45 pm, 15 Aug
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2893. |
|
Hi... |
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Just popped in to say hi to you all. Mum cooked a fab roast chicken dinner and now Im off to read to the kids. Have a great night - hugs to you all xo
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2894. |
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Joystik |
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Even though its a drag having to go for the extra appointments, its better they are very careful to more than compensate with the procedures and treatment.I had extra of everything as my specialist was very cautious and in hindsite I am glad he was :)) janetmk1 (40 ) 6:50 pm, 15 Aug
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2895. |
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Hi Paula :)) |
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Lucky you!! I can't remember the last time my mum cooked for me, think it must be at least 10 years!! Enjoy it :)) janetmk1 (40 ) 6:51 pm, 15 Aug
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2896. |
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christyw |
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You have a tough cookie there by the sounds of it. Having been in a similar situation and family not facing reality, I would say leave your partner in denial till he is ready to deal with it (my brother was the same about my dad). Best you can do is make sure he can get to appointments and get home and like somone suggested ring up and get as much help as you can from the nurses, or the cancer society. Many of us are strong believers in suppliments though somehow I doubt you will be able to get him to take any but you may be able to slip some descretely in his food. :/ Good luck with the weeks ahead of you :)) janetmk1 (40 ) 7:00 pm, 15 Aug
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2897. |
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bogeyi |
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Hows Ryan today? janetmk1 (40 ) 7:01 pm, 15 Aug
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2898. |
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hes gooooooooooooooooooood |
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hes had blood and platelets today so his skin colour looks beautiful, this morning he was pale as was hard to tell the differnce between him and the sheets.lol We were the talk of the ward this morning with the new shift coming on, one of the nurses that was on last night has never seen that happen with the eye in the 7yrs shes been here so it was interesting to see.
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2899. |
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Yayayay for Ryan :)) |
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Thats so good to here Its awful when they go really pale,reminds you of how sick they really are.Its onwards and upwards for Ryan now :)) janetmk1 (40 ) 7:48 pm, 15 Aug
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2900. |
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OOOH Maybe my first |
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hundy????? yay for Ryan - Hi Bogeyi xo
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2901. |
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Thanks Janet |
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MMMM tea was delish. I am making the most of it for sure. I dont get on here much at the moment. Josh cracks me up checks the xbox website daily to see if the games are updating all the time. I said I would have to sort out the emulator thingy if new ones get added?? Oh man, is nothing simple anymore lol. |
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2902. |
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joystik |
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Good to have the extra radiotherapy to be extra sure. I had 25 treatments and found it wasn't nearly as bad as I expected. I had a few burns, but didn't get very tired at all. Some of the people said they were shattered with exhaustion, but I never found that. Everyone is different. I would say if you have coped so well with chemo, you won't be bothered much by radiotherapy. It is only 10 minutes a time. It took us longer than that to find a car park at Waikato Hospital!!! The oncology specialists keep an eye on you too, all through radiotherapy, and everyone is so nice in the clinics.
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2903. |
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G'Day Neighbour Hi Paula |
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It is nice to see you back here and I am sure you and Josh are pleased to leave the hosp in your dust (yet again) I don't know what has gone wrong with this pc but I have been unable to access Joshi's caringbridge site... I was going to write a few lines while you were down in Kew, but no matter what I did, I could not make it work . Never mind .. Weatherwise, today had to be about the best day in the whole wide world down here in Southland, don't you think Paula. It was a good day for calves to arrive also ( they might need to find some extra warmth tonight tho !!) farmerlloyd (24 ) 8:56 pm, 15 Aug
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2904. |
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Hi Paula :) |
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the software I sent to you is the emulator. He should be able to play all the games on the website. If he can't let me know and I will have another look :)) janetmk1 (40 ) 9:01 pm, 15 Aug
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2905. |
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Hi Janet |
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Hope your weather improved as the day went on . did I read that it started OK then clouded up a bit ... and just in case you are wondering, we are managing to keep this place ticking over OK with our "Boy's only" effort. 3 meals a day, fire blazing , dishes mmmmm they will be done by morning !!!what else Oh well I will get around to the what else later !! farmerlloyd (24 ) 9:10 pm, 15 Aug
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2906. |
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hi everyone.......aves to paula and josh |
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nice to see you back on here. Ryan is looking so much better and has his energy back, eating noodles and having a milo. I am shattered and think I migh just have an early night, even if i just lay in bed, I think the last 3 weeks has caught up on me....night all will see you in the morning.
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2907. |
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Hi farmerlloyd |
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Glad to hear the males are managing,must be eating takeaways(LOL)fire blazing?(gas fire)dishes hmmmmm? lmao.. SOunds like you guys are doing well, better than this lot would do!!! Can you get on the caring bridge site at all? coz if you can and its just josh's site you are having trouble with try deleting your cookies and rebooting your pc. :)) janetmk1 (40 ) 9:16 pm, 15 Aug
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2908. |
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Night Bogeyi |
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I hope you get a good nights sleep, it going to take you a while to catch up on sleep. janetmk1 (40 ) 9:17 pm, 15 Aug
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2909. |
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Joystik |
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what a busy life you have, and with 25 sessions in front of you I can imagine when they start you will have weekdays in Dunedin and weekends at home. My sis'in law spent some time up there earlier this year doing the same approx 16 sessions if I remember correctly. she stayed opp dental school, maybe the same place landylass used ..But to finish this wee note to you on a big plus I see you had the same GREAY weather today as we did here !!! It makes you glad to be alive . farmerlloyd (24 ) 9:18 pm, 15 Aug
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2910. |
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Janet |
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thanks so much ... I couldn't access caringbridge at all and yes it did refer to cookies not enabled .. but when i went to internet options I saw that cookies were enabled .. but will follow your advice .. you are a real help with pc and high tech advice ( maewest, paula and now ...me !!! ) thankyou .. farmerlloyd (24 ) 9:22 pm, 15 Aug
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2911. |
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Nite Bogeyi |
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this thread just takes off when your back is turned But I rmrmber enough that your Ryan is probably pretty contented tonight ( well at least I hope so ) get yourself many hours of zzzzzzzz's Bogeyi ...I really don't know where you have got your strength from to carry on with the small amount of sleep you have been getting lately . Nite again farmerlloyd (24 ) 9:26 pm, 15 Aug
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2912. |
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farmerlloyd |
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don't thank me lol it might not work!! :)) janetmk1 (40 ) 9:30 pm, 15 Aug
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2913. |
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ok one last check just done Ryans |
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update on his site and now im off...nite nite
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2914. |
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Hi Hardyro, I had 10 out of 16 lymph nodes either |
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partially or completely involved with tumor, which was not really good news, as far as I was concerned. Initially, I was told I would only have 15 treatments, but the radiologist decided that I should have 25 and they would do less power, more treatments thing! Especially to the neck area and under the arm. The biggest part will be having to be up in Dunedin 5 days a week for 5 weeks! I got all the information on acommodation today so I will have to check it out. I'm not worried about it at all especially seeing as the chemo has been pretty much 'a walk in the park' for me. Thanks for all you helpful tips..... joystik (285 ) 9:44 pm, 15 Aug
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2915. |
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Dize, I will stay close enough to the hospital |
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so that I can walk there each day. They said it would take 20 minutes a day from arriving til leaving, including the treatment. Kevin want to come too so we will probably get a motel. We have a rental house up that way that needs a bit of renovating so we might do that at the same time. Just a thought at this stage.....Is all your packing done?? joystik (285 ) 9:47 pm, 15 Aug
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2916. |
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Good evening farmerlloyd, sounds to me like you're |
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coping real well! Going to be a bit fresh in the morning by the feel of things but who cares if you get the beautiful day like today aye. I didn't get my tunnel house cleaned out yesterday, so I plan to do it tomorrow as well as make 2 pair of bike shorts that a lady has bought. Another busy day, but hopefully I will have time to go for a bike ride too. Might meet Josh out riding his bike too.... joystik (285 ) 9:50 pm, 15 Aug
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2917. |
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hi there |
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welli had my treatment and i feel great so far hoping it stays like this but not sure that it will.the staff are wonderful and i was well looked after.ill check in in the morning and tell you how its going then.till then sweet dreams all.
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2918. |
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Hi Bogeyi, so pleased to see that your Ryan is |
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getting back to his old self again tonight. Eating is a good sign! You need to have a decent nights sleep, but its hard to get that in the hospital. I had to wait until I got home before I got a good sleep. Been thinking about you guys....Take care and sleep tight.....(((HUGS)))) joystik (285 ) 9:53 pm, 15 Aug
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2919. |
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yes Joystik you are a real inspiration |
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all I can admit to exercise wise is the jogging 5 or 6 nites per week until just before winter. I am feeling that I might start up again soon and if I do .. some of the reason will be because I read your posts and think of you bike riding most days !! farmerlloyd (24 ) 9:56 pm, 15 Aug
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2920. |
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We will have no trouble getting |
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this up to 5,000 for Sonia before she comes back. As long as no so-and-sos think it would be fun to delete it again. Nothing can keep us down though, can it? We are too strong!!
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2921. |
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Janet |
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I have done as you suggest but what I really think is wrong is ... I do not have the correct web address. So I guess I wil;l wait for Paula or some nice helpful person to help me with that ( promise not to lose it ever again !) farmerlloyd (24 ) 9:59 pm, 15 Aug
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2922. |
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Hello yawhwat, pleased to hear it all went well |
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for you today. Make sure you take all the meds as directed, and you wont go far wrong. I havent really had any side effects at all from my chemo. What sort are you having? Look forward to hearing fom you in the morning. Have a good sleep tonight and see you tomorrow.... joystik (285 ) 10:00 pm, 15 Aug
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2923. |
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farmerlloyd try this... |
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http://www.caringbridge.org/index.htm go to visit a site, joshuar janetmk1 (40 ) 10:03 pm, 15 Aug
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2924. |
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lol farmerlloyd.. |
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that was going to be my next question,if you had the right address, but was a bit worried about offending you :)) janetmk1 (40 ) 10:05 pm, 15 Aug
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2925. |
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Hi Farmerlloyd, I just was going to give you the |
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site for Josh too www.caringbridge.org/visit/joshuar I just tried that out and it worked for me so it will for you too.... joystik (285 ) 10:09 pm, 15 Aug
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2926. |
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Sorry Janet, how could I read the messages and |
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miss that you had given the address too?? Must be time I went to bed.... joystik (285 ) 10:10 pm, 15 Aug
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2927. |
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This time Thanks |
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Janet I'm in business. Thanks so much I appreciate your help . farmerlloyd (24 ) 10:10 pm, 15 Aug
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2928. |
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Lucky you Paula, having your mum cooking a lovely |
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dinner for you all. Josh is really enjoying having Nana in the house. I just loved his email. You could had 40 babies by morning!! I saw lots of new ones around today on my travels, and cute wee lambs too. Do your kids have pet lambs?? I guess you ave enough to do without extras at this time of the year. Thinking about you lots. Good luck for tomorrow with your appointment....((((HUGS)))) joystik (285 ) 10:13 pm, 15 Aug
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2929. |
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Farmerlloyd, the neighbour and I were walking for |
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90 minutes every week night up until the end of daylight saving. There were a group of us to begin with but quickly they all dropped off until there were just us two left. We both walk very fast though, and the others just couldn't hack it. Looking forward to doing it again in a couple of months... joystik (285 ) 10:16 pm, 15 Aug
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2930. |
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Hi cloffie, you are busy, busy with all that |
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swimming and water therapy aren't you. It really is a great thing that you do for all these people. see you again tomorrow.... joystik (285 ) 10:18 pm, 15 Aug
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2931. |
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108 weeks since cancer took Mum................... |
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2932. |
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your welcome farmerlloyd |
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have a good sleep :)) janetmk1 (40 ) 10:19 pm, 15 Aug
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2933. |
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Sorry to hear that mjrh.........its 23 years since |
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it took my mum too. It affects 1 in 3 people in New Zealand right now, so its little wonder that each of us knows so many people affected by it. Take care and thanks for posting....(((HUGS)))) joystik (285 ) 10:20 pm, 15 Aug
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2934. |
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Hi cole, thanks to you too for posting, nice to |
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see you again. As you can see we are still keeping this going strong while Sonia is on holiday. There will be heaps of reading for her in 10 days aye?? Take care and keep smiling. See you again soon..... joystik (285 ) 10:23 pm, 15 Aug
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2935. |
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Hi christyw, sorry that this cancer thing is..... |
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affecting your family too. Anything you need to know about the treatment, you could ask the Oncology team at the hospital. Also the Cancer society are very good and offer lots of support. If you want to be involved with the cancer society, you have to contact them - they wont contact your FIL. Hopefully your partner will come round and accept whats happening and be a support to his Dad. He will need lots of support....it can be a dark and lonely time for lots of people....Keep your chin up and support him all you can....((((HUGS)))) joystik (285 ) 10:27 pm, 15 Aug
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2936. |
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mjrh and joystik |
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25 years since it took my Mum. I believe the 1 in 3 ratio!! Who knows what causes this, lets fight, fight fight it!
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2937. |
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Dize |
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I guess Maewest has the bag carrying job for you, collared ?? but if you think they may be too heavy for her?? my contact numba is !@$%^&**() Just joking.. but seriously wishing you a good time away in the sun !!!Remember to come back here and tell some tales farmerlloyd (24 ) 10:28 pm, 15 Aug
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2938. |
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Thanks thegeeza for your post.......I feel so sad |
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for you and your partner having to face this. Its not nice at any time but you just kinda have to look to support him as much as you can, and find out as much information as you can so as to help with that support. You also need Hope, Faith and Love. I will be thinking of you both and send you love and (((HUGS))) Stay strong and post again when you can....... joystik (285 ) 10:32 pm, 15 Aug
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2939. |
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Hi Landylass, where did you stay when you were |
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down having Radiotherapy? Seems that most people have 25 treatments dont they? You did well with your knitting, but I dont envy you on the next project , the shawl! I wouldn't have been game to tackle anything that large. Last year I was knitting feathers wool scarves at the rate of about 1 a week. Everytime Lauren saw a different colour, I would knit it for her, and then for her firends, and then for me too. We must have about 8 different coloured ones each. They are so quick and easy to do though... Have a good sleep wont you and see you tomorrow. joystik (285 ) 10:37 pm, 15 Aug
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2940. |
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Oh and Landylass I forgot to mention............ |
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I have quite a few bottles of bubbly on ice, just waiting for the phone call, whenever it comes!! joystik (285 ) 10:38 pm, 15 Aug
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2941. |
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Wheres Boop tonight? Must be busy doing something |
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more exciting. Probably looking at new kitchens in brochures, or maybe good used ones on Trade Me. There have been some really nice ones on Trade me that I have seen. What was your day like up in Buller today? We had a cracker day here. Lovely warm spring sunshine without the wind. And a repeat performance tomorrow too I think......Must be going to see you tomorrow ....sleep tight... |
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2942. |
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And Maewest, you are missing too, but you will be |
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still at work I guess. Hope the day has treated you pretty good too. I will see you tomorrow....I'm off to bed now...(((HUGS)))) joystik (285 ) 10:45 pm, 15 Aug
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2943. |
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Hope I havent missed any of you special people |
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and if I have then this GOOD NIGHT is for you. See you all again tomorrow........Have a lovely restful sleep, and sweet dreams....((((HUGS))))) joystik (285 ) 10:48 pm, 15 Aug
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2944. |
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thegeeza |
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Can I say that while I was laid up in hospital a book by Lance Armstrong was given to me and for the most part it inspired me how this bloke dealt to his testicular cancer and went on to win Tour d' France over and over. In the early stages it showed that he had guts and determination to hold on to life and fight that bug. I truly hope you and your partner can pull through this and your man will become strong and fit and healthy again. I'm sorry I cannot remember the title of the book. Google searching will throw up many links. I will have a wee look myself later .. farmerlloyd (24 ) 10:48 pm, 15 Aug
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2945. |
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Waving to Sonia, Brent, Lydia and Emily....... |
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but they wont see me because they will be all tucked up in their beds asleep after a hard day on the beach.......HI GUYS.....We miss you........ joystik (285 ) 10:50 pm, 15 Aug
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2946. |
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Can we get another hundy before I go to bed?? |
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I would think so.....Where is everyone???? joystik (285 ) 10:51 pm, 15 Aug
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2947. |
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Its only going to be a fifty anyway.......... |
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.............. joystik (285 ) 10:51 pm, 15 Aug
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2948. |
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But I will do it for ........... |
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.......... joystik (285 ) 10:52 pm, 15 Aug
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2949. |
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Two very special.......................... |
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............................. joystik (285 ) 10:52 pm, 15 Aug
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2950. |
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Boys...........Ryan and Josh.................... |
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Hoep you're having a good sleep boys....and enjoy your day tomorrow..... joystik (285 ) 10:53 pm, 15 Aug
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2951. |
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If Maewest was able to get there |
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she just might be attending Mr Gawler's evening in Chch, Joystik ...if she went I hope she found it of interest because I feel a bit responsible for suggesting for everyone who could go.. to do that! I've got some housework to tidy up Nite all .. farmerlloyd (24 ) 10:54 pm, 15 Aug
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2952. |
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Hi joystick |
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every time I went to come on here today I got a visitor and then I watched the bowls NZ playing Aus we won that one.You had a busy day and good luck for tomorrow. My sister had 6 weeks radiation so I guess that works out the same as you. We had a glorious day here the sun had a lot of warmth in it. I can see you and Joshi going bike riding together soon. Only two weeks till whitebaiting we may not get as many people here this year with the price of petrol. Have a good sleep.
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2953. |
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Hi paula and Joshi |
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How nice for you to be a wee bit spoilt Paula and have the tea cooked you certainly deserve it. I was thrilled to hear Josh was out riding the bike he must be a wee bit better. Take care
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2954. |
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Bogey glad your day was better |
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and ryan had a change of diet noodles instead of toast.Have a good sleep hugs
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2955. |
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Hi maewest, farmerlloyd, dize, meridian, landylass |
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and every one I missed I just feel so tired will have to go to bed see you all in the morning, Nightxx
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2956. |
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sonia, brent, lydia and emily |
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hope your holiday is going marvelous for all of you Hugs
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2957. |
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farmerlloyd |
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There are 3 of us going to Coolum, so another bag carrier would be very handy. You are most welcome, the only drawback is that you have to be at Hamilton airport for check-in at 4.40 a.m. (yes, that's right) on Thursday morning. I see a small geographical problem there!!
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2958. |
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Thanks everyone |
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very good to know there's such a supportive group of people on here. I'm absolutely exhausted this morning. FIL was up all night coughing up - he'd turn on all the lights and not shut the toilet door and we have a small house so the light would shine in on me (have to keep the door ajar for the cat) and then the noise would keep me awake. I feel awful for him but I don't know how I'm going to cope with not getting any sleep each night. I can't help care for him if I'm dog tired all the time. Partner asked FIL what the chemo was for today (treatment or pain relief) and FIL doesn't know so obviously hasn't asked Dr any questions. Will the oncology team answer my questions (I'm not family). christyw (178 ) 7:22 am, 16 Aug
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2959. |
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morning all we had a pretty good sleep |
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i feel so much better. Christyw will your FIL let you or hubby go to the appointments to help absorb all information, 2 people there is always good as in your case im sure you have lots of questions you want answered an maybe FIL is in shock or just not sure what to ask....
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2960. |
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bogeyi |
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FIL doesn't want anyone else with him. My partner has dropped him off at the hospital and will pick him up after work. I was going to go to the hospital later this arvo but I'm so tired that my boss is sending me home to get some sleep before having to deal with him again tonight. I feel so mean but I'm so tired. My partner and I aren't actually married (just living in sin!) so I'm not related ... I just call him FIL. christyw (178 ) 8:52 am, 16 Aug
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2961. |
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christyw it sounds like hes in denial???? |
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maybe he feels like he dosent want to burden you guys, does he talk about the cancer????I know it souns silly but you will cope with the sleepless nights your body soon adjusts we are three weeks into very broken to no sleep and you just seem to cope.
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2962. |
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I think the entire |
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family is in denial. He refuses to talk about it. Typical male! The entire family is male (the sons have different mothers and he's not with any of them anymore) so it's a completely male dominated household. There's the Dad and 3 sons (my partner, his younger brother by one year, and an even younger brother who is only 10). They haven't even told the 10 year old that his Dad is having chemo. christyw (178 ) 9:13 am, 16 Aug
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2963. |
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Good morning everyone |
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What a frosty morning but a beautiful day!!!I hope you all have sunshine today:)) janetmk1 (40 ) 9:23 am, 16 Aug
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2964. |
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Hi everyone |
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TM is finally up and running. Sorry about last night. I bought a Bette Midler DVD (off TM) and was watching that...after Coro of course! Fantastic day here after a heavy frost. We are off for the afternoon...don't know where yet. We will see where we end up. Hope you are all having a lovely day. I'll talk to you all tonight. XXX maewest (79 ) 12:03 pm, 16 Aug
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2965. |
|
Hi everyone,I have been trying on and off all |
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morning to get one here and it has been temporarily unavailable. So finally its all up and running. Hope you are all well and happy today. The day is beautiful with a warm wind blowing, so I have washing for miles out there. Did all the sheets and duvet covers. Just about to get them in and re-make the beds. Cleaned out the glasshouse, and now I'm going on my bike to deliver some pamphlets for Lauren. Oh and made 2 pair of bike shorts to post away and hemmed a pair of new jeans for Kev. So I have been busy. See you all again a bit later. joystik (285 ) 12:57 pm, 16 Aug
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2966. |
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Oh it will be briefly, if I do get here, cos we |
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are off out again tonight!! My bloods were A1 so I have Chemo tomorrow morning at 9.30. Thats number 4, so only 2 left after that.....YAY!!! joystik (285 ) 12:59 pm, 16 Aug
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2967. |
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Hi Bogeyi and Ryan, happy to see you had a |
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better night and feel rested today. Sleep is definately good for you! Hope today is treating you well so far. joystik (285 ) 1:00 pm, 16 Aug
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2968. |
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Hi Paula, you will be in town for your appointment |
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I guess. Hope it all goes well for you. Such a beautiful day again aye. How's Josh today?? Out biking? I'm going soon, but the wind is getting up so I will need to work hard today wont I. joystik (285 ) 1:03 pm, 16 Aug
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2969. |
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Hi Maewest, hope you enjoy your outing today..... |
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look forward to haring about it when you get back later on. Good frost here too. joystik (285 ) 1:03 pm, 16 Aug
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2970. |
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Hi christyw, the situation you are in with your |
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FIL does make things quite difficult. Do you think he is really undersatanding anything that is being tld to him at all?? My husband has been to every appointment that I have had and he comes to all the treatments. I wouldn't remember half what is told to me if he wasn't there. Sometimes I just miss stuff because there is so much to take in. But I guess if thats the way he wants it then there isn't much you can do, except be there to support your partner and his Dad. Would he let you go with him to an appointment if you asked or offered?? Seeing as he is living with you, it would be decent for youto know really I would have thought. Take care and lets us know how you get on if you want to... joystik (285 ) 1:12 pm, 16 Aug
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2971. |
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Hi Boop, I see there were a few reasonable catches |
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of whitebait down here yesterday. There are heaps of registered stands on the Aparima river, and people have been gearing up for a couple of weeks now. Hope you're having a good day. joystik (285 ) 1:13 pm, 16 Aug
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2972. |
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Hi Dize, you better have a quiet day and a very |
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early night tonight or you wont be on that plane at 4.30 in the morning. Hope you've got a beautiful day like we have to relax in.....If I dont see you later, have a great holiday nd we lookforw to hearing all about it when you get back. Take care.... joystik (285 ) 1:15 pm, 16 Aug
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2973. |
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Hardyro |
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I have been thinking of you, so just popped in here to get a quick message to you. Did you want to ask any questions regarding the tram flap, or do you just want me to tell you how mine went etc? Let me know if you want to contact me directly. Now, am I right in thinking you haven't had the mastectomy yet? Sorry, I cant remember. I am happy help in anyway I can. Shirree xxxx meridian1 (300 ) 1:23 pm, 16 Aug
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2974. |
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I everyone else |
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I am sorry I don't have time right now to acknowledge you all personally. Lennon is heaps better today. Love to you all!!!! meridian1 (300 ) 1:25 pm, 16 Aug
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2975. |
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Hi Meridian, glad to hear that Lennon is lots |
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better. Must have been terrible for him. Take care and see you later too......(((HUGS)))) joystik (285 ) 1:48 pm, 16 Aug
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2976. |
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hi joystick |
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good news for you I am so pleased for you. Lovely day again I am getting out before I have any more visitors. Have a friend and husband coming tuesday then more friends on the 25th and then son and family for part of school holidays so have that too look forward to. Grandkids are lovely.
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2977. |
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That message sounded odd |
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I hope you understood it. Bogey well done getting a good sleep I bet you feel heaps better.
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2978. |
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bumping cause we are having a good day |
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:)
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2979. |
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Hi everyone |
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Dont have much time on here these days but do think of you all. Bogeyi thats great!!! Josh is looking ok, just got back from hospital - they apirated my cyst and will go back next Friday for results. Took one look at Josh and his temp was up. Bugger!!!! I popped into his ward today for his blood results to see if we are to start chemo again and they are still concerned he has a cough. Looking to do a bronchoscopy???? Think his temp is heading down, but funny to spike like that again? :o/ Chemo starts again tonight. Love to you all xoxoxo
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2980. |
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Hi there |
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Sorry just stumbled across this thread and kind of feel like I am intruding, but, my Poppa has just been diagnosed with Liver cancer (which is secondary), they think his primary cancer is lungs - we are still waiting for those results. Anyway just wondering if anyone has any info on either cancers to help the family deal with it. He had cancer 2 years ago (lymphoma) and is in remission for that, these cancers are totally new and supposedly have nothing to do with the old cancer. chantelled (43 ) 3:14 pm, 16 Aug
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2981. |
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Hi chantelled, sorry to hear about your Poppa's |
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diagnosis. I dont know anything about any of those cancers that you have mentioned, but ther may well be other posters on here that do. Have you tried contacting the Cancer Society in your area? They were so good down here and had such a loyt of information to pass on to people that want to be informed. Also the Oncology Dept at the hospital will be able to help you too. Thanks for posting and feel free to stay with us and let us know how he gets on. Take care and (((HUGS)))) to you...... joystik (285 ) 5:05 pm, 16 Aug
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2982. |
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Hi Paula, did you know you were aving the cyst |
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aspirated today?? Was that done at the cottage where you had the mammogram done? Hope Josh's temp doesn't bother to keep going up, you could do with staying away from Kew for a while. I have my chemo tomorrow at 9.30, so I will have to be up and off first thing wont I. Right now I need to be getting dinner on. Tonight its crumbed Hoki fillets, mashed spud, minted peas and carrots. What everyone else having?? joystik (285 ) 5:07 pm, 16 Aug
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2983. |
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Have a great holiday Dize! |
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Don't envy your early start. Chrissy just a thought, try ringing the hospital and talk to the oncology social worker. The s/w might have some suggestions to help you cope or how you deal with getting information. There is usually a counsellor available too who might have some suggestions for how you deal with this situation you find yourself in. Good luck. landylass (49 ) 5:11 pm, 16 Aug
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2984. |
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I've been a lady of leisure today |
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Joystik, had my hours massage and it was bliss! Then went to see Diabetes Specialist and got on ok there too, going to really try and up the exercise now. She suggested swimming which I am not that keen on! Everyone is telling me I am on the right supplements. Massage lady is a naturpath too and has had cancer herself twice and is now clear, and said I was on the right track. The specialist even said they wouldn't hurt me and might do some good. I stayed at Cancer House opposite the dental school. Go and ask for Sandra when you go for your markup and she will show you through the place. I met a few who were also staying in motels. I actually enjoyed Cancer House because I was on my own and got to know the others. Where ever you stay you are going to have noisy students but by the time you get there they might have finished exams and gone home! landylass (49 ) 5:17 pm, 16 Aug
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2985. |
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Joystik after my lazy day |
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I haven't even got tea on! Might be fish n chips tonight - there goes the healthy diet out the door! My house is a pigsty and I am going to have to do some housework tomorrow! Yah another dose of chemo down tomorrow for you. Not long to go now. landylass (49 ) 5:19 pm, 16 Aug
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2986. |
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Hi Landylass, Joystik |
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I am having tuna and rice - boring!!! Mum just made macaroni cheese for the rest of the family. No Joystik I didnt know they were doing an aspiration today but thought they might. I am breathing a huge sigh of relief Joshs temp has gone down again. Hi to FarmerLloyd, busy days for all at the moment. Another cold one approaching it was a beauty of a frost this morning. Got all my gear sorted tonight to feed the babies in the morning. Landylass sounds like a nice relaxing day for you - Good you deserve it!!!! Enjoy the fish n chips if thats what you end up having. Love and hugs to all. Hope it all goes well Dize5 ;o)
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2987. |
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Hi Paula,Landylass, Joystik.... |
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its thai chicken curry tonight for us and i'm starving so be back later, hope you all had a good day. janetmk1 (40 ) 5:57 pm, 16 Aug
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2988. |
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Meridian |
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Hi there, yes would like to hear how your tram flap op went. I am about to have my mastectomy and reconstruction done on 30 Aug. I have completed chemo and 25 sessions of radiation. I am 34 years old, so reconstruction was decided to be done at the same time due to age, healthy and non smoker. Just saw some photos today of similar operation, and am meeting with a 31 year old girl who has had it done. I know it is going to be a bit sore around the tummy muscle area,..... and I am a big wimp on pain.
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2989. |
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Joystik |
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Thinking of you and your 4 th chemo session. Over the half way mark!!! Make sure you treat yourself to something when you have completed all 6. I went to Surfers with my man, it was great. Good for the body and mind.
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2990. |
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wavin from oz |
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hi all just having a wee look at the thread on my friends lap top.his op all went well yesterday and taken the eye out. good news its primary cancer so no more treatment at this stage. he was in fair bit pain last night but settled down today. been for a walk and its hot.all good at home , hope you are all having a good day. landy lass what the heck have fish in chips your awollled occasionaly kiwikaz3 (12 ) 6:43 pm, 16 Aug
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2991. |
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waves to kiwikaz3 |
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glad all has gone well.
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2992. |
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bogeyi |
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gidday how your day been and how ryan doin? hope all good. kiwikaz3 (12 ) 6:48 pm, 16 Aug
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2993. |
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we are going well todays been a good |
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day...
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2994. |
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bogeyi |
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hey good one glad u havin a good day waitin to chat to the kids and hubby to see how there day has been. |
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2995. |
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hugs to everyone and well done!! |
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There have been approx 478 posts since Sonia left so she will be delighted to see this when she gets back - i have the thread saved (just in case!!) and am saving every day. Take care and you are all in my prayers....Trish
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2996. |
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this |
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2997. |
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is... |
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2998. |
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for |
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2999. |
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all |
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....
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3000. |
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:-) |
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:-) |
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